Palliative care for those with neurological conditions

Palliative Care Australia and members of the Neurological Alliance Australia have released a position statement defining the organisations’ principles on the provision of palliative care and care planning for people with neurological conditions.

The statement was released at one of PCA’s popular lunchbox briefings hosted at Parliament House in Canberra by the Parliamentary Friends of End of Life Care group this week. CarolBirks, National Executive Director, Motor Neurone Disease (MND) Australia and PCA President and APHN Council Member Professor Patsy Yates carried out the official proceedings.They were followed by presentations from two “consumers”, Robyn Kapp OAM, Executive Officer for Huntington’s NSW and Andrew Potter, from MS Australia’s National Advocates Program.

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Robyn spoke of her own experiences with Huntington’s disease and the lack of palliative care for many members of her family – her grandfather, father and sister – as their health declined. Of the need for recognition of the plight of Huntington’s sufferers, “Light a candle,” she said, “so all families don’t have to face the darkness.”  read more

From ehospice