Family Caregiving and Palliative Care: Closing the Policy Gap

20140707-03HEALTH AFFAIRS | Online – 2 July 2014 – In theory palliative care practice supports the principle of person and family centered care, which addresses the needs of both the recipient of care and his or her caregiver, promotes communication and shared decision-making as well as coordination and collaboration by health care delivery teams. While these concepts have been recognized and included in practice guidelines – for example, those established by the [U.S.] National Consensus Project on Palliative Care – they are often more an ideal than a reality. But the practice arena is far ahead of the policy world. Support for family caregivers has largely been absent from policy discussions of palliative care, which focus on professional, clinical, regulatory, and financial issues…read more

An article from Media Watch, compiled and annotated by Barry R. Ashpole (Ontario, Canada). More reports can be found at IPCRC.NET

More manpower needed in palliative care sector

20140707-02SINGAPORE | Channel AsiaNews – 5 July 12014 – ‘More manpower needed in palliative care sector.’ In 2020, more than 10,000 Singaporeans are expected to be in need of end-of-life care. To meet this need, the Health Ministry estimates it will have to double manpower capacity in the palliative care sector from the current 150 to 300 by 2020. In addition, other healthcare professionals should also be well-equipped with the skills to deliver palliative care. One suggestion is to make basic palliative care training a must in non-palliative care disciplines…read more

An article from Media Watch, compiled and annotated by Barry R. Ashpole (Ontario, Canada). More reports can be found at IPCRC.NET

End-of-life care in Singapore – higher Medisave withdrawal limits for palliative care

20140707-01SINGAPORE | Channel AsiaNews – 28 June 12014 – Patients who need palliative care will soon pay less out of their pockets as they will be able to draw more from their Medisave accounts to pay for such services. The Ministry of Health will raise the withdrawal limits from 1 January 2015. Patients can withdraw up to S$200 per day for inpatient hospice services – S$40 more than the current S$160. The lifetime withdrawal limit will be raised to S$2,500 from the current S$1,500, and no cap is set for those with terminal illnesses such as cancer or end-stage organ failure. The infrastructure will also be improved, with more beds to be set aside in community hospitals for patients on palliative care. No target is given but the health ministry is working with several community hospitals. Currently, there is one community hospital that caters to patients on palliative care…read more

An article from Media Watch, compiled and annotated by Barry R. Ashpole (Ontario, Canada). More reports can be found at IPCRC.NET

Palliative Care Workshop on Suffering and Hope

Hospis Malaysia8 to 10 August 2014 @ Hospis Malaysia, Kuala Lumpur

Dr Susan Marsden, a Palliative Care Consultant, and Ms Liese Groot-Alberts, a professional Grief Therapist, will be coming all the way from New Zealand, to facilitate and address the issues around suffering and hope. “How to deal with issues of suffering”, “how to give hope when all curative treatment becomes futile” are some of the areas that will be covered in this 3-day workshop. This workshop is for doctors, senior clinicians, nurses, psychologists, counsellors and especially those involved in making crucial decisions when the transitions from cure to prolonging survival and palliation becomes the aim of holistic patient-centered care.

For more details and registration, please visit their official website here.

Health Minister pledges support for palliative care at Singapore conference

20140701-01The Minister of Health of the Republic of Singapore has unveiled a plan to extend and improve palliative care provision in the sovereign city-state.

Addressing healthcare professionals, volunteers and others at the sixth edition of the Singapore Palliative Care Conference (SPCC 2014), Mr Gan Kim Yong, Minister for Health, shared a plan of action by the Ministry of Health to develop palliative services systematically and holistically across care sectors…read more

From ehospice

Design a universal symbol for children’s hospice and palliative care

20140630-01The search is on…it’s time to get creative! The ICPCN is looking for a universal symbol to represent children’s palliative care and they are calling upon the international children’s palliative care community to assist in the process.

As the only international charity fighting globally for the rights of life limited children, the ICPCN would like to find and promote a universal symbol for children’s hospice and palliative care. They want this symbol to become as recognisable as the pink ribbon for breast cancer, the red ribbon for AIDS and the black and white panda for the WWF…read more

From ehospice

Getting end-of-life care right for the child and the family


“It is about seeing palliative care as a positive option that needs to be everyone’s business and needs to be reintegrated into everyday care on the ward…”

It has been said that we only get one chance to get end-of-life care right for a family. Francis Edwards was mandated to find ways to prevent children with palliative care needs from ending up unnecessarily on the PICU at Bristol Royal Hospital for Children. He shares the process and some innovative tools that have helped towards achieving this goal…read more

From ehospice

An innovative palliative care programme is changing and saving children’s lives in China

20140620-01Butterfly Children’s Hospices began changing the lives of abandoned, sick children in China in an innovative programme begun by Lyn and Alan Gould in 2006. Working closely with local welfare centres they are slowly changing attitudes along with cultural practices and policy in the regions in which their two hospices operate.

In a follow up story to last week’s article on sick babies being abandoned by their families in China, ehospice spoke to Katie Hill, Head Nurse at the Butterfly Children’s Hospices in China. Katie describes how they are not only working closely with the Chinese welfare authorities to provide palliative care for the sickest of these babies but also arranging life-saving treatment and surgery…read more

From ehospice

In the media: SABC Newsroom interview with Joan Marston

20140616-03In a live interview with the South African Broadcasting Corporation’s (SABC) daily news programme, Newsroom, presented by Eben Jansen, Joan Marston was asked about the recent resolution on palliative care passed at the 67th World Health Assembly and other issues related to children’s palliative care.

Speaking about her recent visit to Geneva to attend the 67th World Health Assembly (WHA), the side event on palliative care and to give a presentation for the ATOME project on access to opioids, Joan said that it was an exciting time for the palliative care world as many organisations had been fighting to get palliative care onto the agenda of the World Health Organization for many years…read more

From ehospice

Learning and networking on the second day of EAPC 2014

20140616-02Learning and networking continued on the second day of the World Research Congress of the EAPC.

The day began with a ‘meet the experts’ session, which allowed younger researchers to discuss various aspects of palliative care research with established experts. Sessions included: How to read and write a research paper, how to do action research, systematic review methods, and writing an abstract.

In the first plenary session, Professor David Currow gave an overview of recently published papers in outcomes research, aiming to develop research methodologies that can reliably examine the quality of end of life care…read more

From ehospice

Thousands of sick babies abandoned in baby hatches in China

20140616-01In March this year a ‘baby hatch’ which allowed the anonymous abandonment of babies in China had to close after only 6 weeks as the system had been overwhelmed. China’s ‘one baby’ policy along with poor medical care provision for sick children are contributing to the problem of abandoned children in China.

A harrowing article and video by China correspondent Lucy Watson on the ITV News website today tells the story of parents who are abandoning their sick and disabled children in ‘baby hatches’ that have been set up all over the country.

These hatches are there to assist parents to abandon their babies in a safe place, rather than on the street. Soon after a baby is dropped off at a baby hatch, a nurse from a nearby orphanage will pick the baby up and take it back to the orphanage, to be cared for at the expense of the state…read more

From ehospice

World Health Organisation publishes palliative care resolution

20140613-01The resolution is the result of decades of advocacy.

It calls on WHO member states to work to integrate palliative care into national healthcare systems. The resolution can be found on the website of the World Health Organisation.

From ehospice
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