1st Online forum Discussion on Paediatric Palliative Care

Poster

APHN has set up our very own online forum platform for discussion on palliative care issues. We hope the forum can serve as a contact point to link individuals involved in palliative care to foster collaboration, share knowledge and start discussions in this area. The 1st forum discussion topic will focus on Paediatric Palliative Care. The forum will be accessible for members to log in on 31 January.

 

Early bird registration deadline for APHC extended till 31 January 2015

APHC poster 1

Palliative care advocacy at WHO Executive Board meeting

300115While palliative care is not on the agenda for this year’s WHO Executive Board meeting, there are many areas of follow up from last year’s historic Board meeting and World Health Assembly (WHA) that need to be addressed. Stephen Connor, WHPCA Senior Fellow, reports from Geneva.

The first priority for us at these meetings is to ensure that momentum continues on implementation of last year’s resolution calling on countries to ensure the ‘Strengthening of Palliative Care as a Component of Comprehensive Care Throughout the Life Course’.

In addition to myself, other palliative care advocates here include Diederik Lohman of Human Rights Watch (HRW) and Busi Nkosi from the International Children’s Palliative Care Network (ICPCN).

Numerous meetings have been held with WHO staff involved in planning for implementation of the resolution. Work on a strategic plan for implementation of the elements of the resolution is underway, to be finalized in the near future.

The Ad Hoc Technical Advisory Group on Palliative and Long-Term Care has met and continues to work on planning. A new full time technical officer for palliative care starts in post next Monday…read more

Lien Collaborative builds palliative care capacity in Myanmar

IMG_2584 ver3January 2015 saw the 4th instalment of the training-of-trainers in palliative care program at Yangon General Hospital, Myanmar.

The training was implemented by a volunteer faculty of doctors and nurses from the Asia Pacific Hospice Palliative Care Network (APHN) coming from Australia, Malaysia and Singapore.

As part of the Lien Collaborative for Palliative Care initiative, the program aims to develop palliative care leadership and capacity in the mainstream government health system.

Small group discussions, case-based learning and teaching on the wards by interacting with patients featured prominently throughout the teaching week.

The in-country training is complemented by overseas clinical attachments for selected participants. This is planned to start from September 2015, with the first batch visiting Singapore for a 3 month-long attachment which aims to enhance each recipient’s understanding of running a palliative care service as well as clinical skills.

The APHN team also supports its local partners, such as the Myanmar Medical Association (MMA) in their efforts to engage the Health Ministry.

This advocacy is aimed at better access to essential pain medications, the introduction of palliative medicine into the medical and nursing curriculum, and the establishment of palliative care services at the principal tertiary hospitals.

The MMA has just ratified the creation of a Palliative Medicine special interest group to advance the development of this area of healthcare in Myanmar, including the intention for this group to spearhead the formation of a national strategy for palliative care.

Local media organisations have also been helpful in raising the awareness of hospice and palliative care, read this related article by Mizzima Media.

The Lien Collaborative is also active in Bangladesh and Sri Lanka with several more in-country training programs scheduled over the course of the year.

If you or your organisation would like to be a partner in the Lien Collaborative, please contact the APHN at aphn@aphn.org.

From ehospice

ANZ Position Statement on Paediatric Palliative Care and Paediatric Palliative Care Briefing

“Paediatric palliative care aims to provide the best quality of life for neonates, infants, children and adolescents faced with life threatening conditions. Caring for young people with life limiting conditions brings specific demands and challenges. Working together to overcome misconceptions about the role of palliative care is essential to providing quality care to paediatric and adolescent patients.” ~ Palliative Care Australia

The position statement is available on Palliative Care Australia Website at www.palliativecare.org.au. APHN would like to thank our member from Australia, Dr Anthony Herbert, for sharing providing this update to us.

 

Top ten research priorities for palliative and end of life care revealed

20082014“We hope that the results of this ground-breaking work will help focus researchers and funding bodies on the questions about palliative and end of life care that concerns patients, carers and clinicians the most, as well as demonstrates the need for increased funding in this under-researched area.”

Identifying the best ways of providing care and support to terminally ill people, their families and carers outside of ‘working hours’ has been rated the top priority for the future of palliative and end of life care research, according to a new report launched on 15 January.

A ‘top ten’ of unanswered questions in palliative and end of life care has been published by the Palliative and end of life care Priority Setting Partnership.

The Partnership’s final report was launched today at the Palliative and End of Life Care Research Summit and follows an extensive 18-month consultation, during which over 1,400 patients, carers and health and social care professionals helped determine the most important unanswered questions (i.e. gaps in existing evidence) that could improve overall care and experiences.

As well as research into how care can be provided outside of working hours, other top priorities include looking at how access to palliative care services can be improved for everyone, regardless of where they are in the UK, and what the benefits are of Advance Care Planning…read more

From ehospice

Australian Medical Association calls for cuts to “futile care” to make Medicare sustainable

AUSTRALIA (New South Wales) | The Daily Telegraph (Surrey Hills) – 15 January 2015 – Cutting “futile care” would be better than slashing GP funding to make Medicare sus-tainable, the Australian Medical Association has declared. The Association’s (South Aus-tralia) president, Patricia Montanaro, says savings can be made by cutting expensive treatments that offer no prospect of length-ening or improving life. “We’re continuing to push treatments that may not be what – if you could explain them to the patient and had other options for them – they would choose,” she said. “Futile care is when no amount of medical intervention would pro-long your life expectancy. This is where the thrust of care should be supported care – palliative care. (It’s) usually in the last three months of life, where being hooked up to machines doesn’t make a difference.”..read more

An article from Media Watch, compiled and annotated by Barry R. Ashpole (Ontario, Canada). More reports can be found at IPCRC.NET

Singapore-Indonesia Collaboration to enhance palliative care profession in Jakarta

Jakarta, Indonesia, 20 January 2015 – Non-communicable, life-threatening medical conditions are on the rise in Indonesia, with a projected 10,000 new cancer cases annually in Jakarta alone.* Of these, an estimated 7,000 cases are expected to be at the incurable stage at the point of diagnosis – presenting a growing demand for palliative care services. The Singapore International Foundation (SIF)’s launch of a three-year training programme to enhance the practice of palliative care in Jakarta in partnership with the Indonesia Cancer Foundation, Jakarta (YKI DKI) and Rachel House (RH) aims to help improve care for the terminally ill in Jakarta – Indonesia’s largest city of over 10 million residents…read more

From Singapore International Foundation

China : Children of Party Luminaries Raise Awareness for Dying with Dignity

(Beijing) – Health insurance can solve a lot of problems when a patient’s illness is treatable, but it falls short on handling end-of-life issues for patients with no hope of being cured.

One remedy to this problem is palliative care, which the World Health Organization (WHO) has promoted in dozens of nations, but is only now debuting in China.

Chen Xiaolu, the son of general Chen Yi (1901-1972), a founder of modern China, still cringes at the memory of his father’s final moments. After repeated efforts by hospital staff to resuscitate the general, the dying Chen looked at himself and joked, “I’m a robot now.”

Every time his heart stopped, electric shock treatment made his body convulse. It was very painful to watch, his son says…read more

From Caixin Online

Lien Collaborative for Palliative Care 2015 Teaching Schedule

Pic9

Pic10

Image00001

Image2 (1024x726)

 

 

 

Dates Country Activity
January 2015 Myanmar 4th teaching programme
March 2015 Bangladesh 3rd teaching programme
June 2015 Sri Lanka 3rd teaching programme
July 2015 Myanmar 5th teaching programme
November 2015 Bangladesh 4th teaching programme
December 2015 Sri Lanka 4th teaching programme

Members who are interest to help us as teaching faculty during this period, kindly email us at aphn@aphn.org or call +65 6235 5166 to find out more.

Introducing 목숨 (The Hospice) movie

The Hospice by Chang-Jae Lee / South Korea | 2014 | 110”/54” | Color

2014 Busan International Film Festival | Wide Angle: Documentary Competition

This film is set in a hospice located outskirts of Seoul, where terminal patients who cannot find any more hope come to finalize their lives. On average, a patient spends his or her last 21 days in the hospice, trying to make the most out of what remains of life and preparing for a peaceful death. Some succeed in spending quality time with their beloved, but others keep struggling against the reality of their imminent death. The film invites the audiences to the hospice and offers a unique opportunity to observe the patients and how they deal with death.

Contact: docairways@gmail.com / +82 2 730 0747

The Hospice Trailer in IDFA 2014 Docs 4 Sale from Documentary Airways on Vimeo.

‘Silent Mentors’: aspects of Buddhist bioethics in Taiwan

160115In December, Emeritus Professors Sheila Payne from the UK and Margaret O’Connor from Australia were keynote speakers at the National Taiwan University, at a week long research workshop on ‘Cancer, Hospice/Palliative Care and Bioethics in South East Asian Countries’.

As part of the workshop, participants travelled to the East coast of Taiwan to visit the Tzu Chi University and Hospital in Hualien, two large Buddhist institutions established by Buddhist nun, Jei Chi.

At the University, participants learned about the structure of both the medical and nursing courses, which both operate under the values of compassion, joy, unselfish giving and kindness.

To this end, all first year students learn the traditional tea-making ceremony and the art of flower arranging, activities which also serve to create self-awareness and reflection.

The ‘Silent Mentors’ programme was the most surprising aspect of the curriculum.

Patients and the public can elect to will their bodies to the University, as they do in many western cultures.

The subsequent involvement of the student and the family, and treatment of the body is however quite different…read more

From ehospice

SHC-LCPC Multidisciplinary Palliative Care Forum : The journey of coming to terms with oneself

140115