September 1, 2014 Leave a comment
September 16, 2014
Professor David Clark has written a “End of life studies” blog about the Irish Initiative: Hospice Friendly Hospitals, in which he examines the programme, and asks whether it could inspire similar initiatives in other countries or settings.
“Imagine a project which seeks to take the best attributes of hospice care and inculcate them into the fabric of the acute hospital. Not just one hospital, but all hospitals in a whole country. Consider a project that is about a joined up approach to clinical care when death is near, that takes seriously the relationship between hospital design and the potential to deliver dignified care, and that adopts an ‘all systems’ approach to its mode of operation…read more“
September 15, 2014
In a path-breaking partnership, the Indian Association of Palliative Care (IAPC) and the Indian Society of Critical Care Medicine (ISCCM) have joined hands with the objective of achieving excellence in end-of-life care. The integrated care plan, published in the Indian Journal of Critical Care Medicine, comes four years after a study of quality of death in 40 countries placed India at the bottom.
The 2010 report on this study commissioned by Lien Foundation and conducted by the Economist Intelligence Unit lamented the “incalculable surfeit of suffering, not just for those about to die, but also for their loved ones. Clearly, the deeper inclusion of palliative care into broader health policy, and the improvement of standards of end-of-life care—raising the ‘quality of death’—will also yield significant gains for humanity’s quality of life…read more“
Read the complete guidelines in IJCCM.
Read editorial: Coming together to care for the dying in India.
September 12, 2014
AMA Vice President Dr Stephen Parnis said today the issue of death and dying warranted open and frank community discussion of end of life care options, futile treatment, caring and bereavement and advance care planning…read more
September 11, 2014
The National Breast Cancer Foundation (NBCF) drew urgent attention to the unique challenges the 800 young women annually diagnosed with breast cancer in Australia face, with the launch of its confronting report, Not Just an Older Woman’s Disease: Breast Cancer in your 20s and 30s.
The foundation says there is little awareness that breast cancer can occur in a woman’s 20s and 30s and even in pregnancy. As a result, symptoms can be ignored or dismissed when early detection is critical. Respondents to the report told of how potential diagnoses were dismissed as nothing to worry about, or warranted a wait and see approach. That tends to reinforce the view by health professionals and young women that they are too young to develop breast cancer.
The report focuses on early detection and management of primary breast cancer. The foundation says it is conscious of the unmet needs of young women whose breast cancer has spread, and recognises the requirement for further support, greater awareness, better therapies and more research to counter the negative outcomes. The report also delves into the practical, physical and emotional challenges young women face…read more
September 10, 2014
A number of online portals offer educational opportunities on a range of issues of interest to hospice and palliative care providers and professionals. This article features some sites which you may wish to explore.
One recommended site is the Hospice and Palliative Care Education Online (E-OL). Their state of the art E-OL Courses and webcasts are specifically designed with cutting edge technology to provide new insights, innovation, strategy and information to ensure the delivery of quality hospice and palliative care. E-OL also gives you access to Plenary Webcasts from the latest NHPCO conferences. It brings nationally acclaimed speakers directly to your organization for a fraction of the cost. New courses are added and redesigned every month…read more
September 9, 2014
The Prue Dufour Memorial Fund Bursaries will enable two individuals who are involved in providing palliative care in EU countries to attend hospice23’s 2014 conference. The details of the conference can be found in this flyer.
The eligible individuals must be doctors, nurses, social workers, administrative staff, chaplains, bereavement support workers, healthcare assistants, professionals from allied medical services or volunteers.
Bursary applicants must clearly demonstrate that attendance will enhance their practice and benefit patients with palliative care needs and/or their carers…read more
Further details are available on Help the Hospices website.
September 5, 2014
Hospice physician Dr Amy Clarkson has written a blog post about ‘pill burden’ at the end of life, where patients find themselves taking many medications which are no longer appropriate.
The article explores how people end up taking ‘handfuls’ of medication – whether through over prescribing or the tendency that once started, medications are rarely stopped – as well as why and how this ‘pill burden’ should be reduced…read more
September 4, 2014
APHN council honorary treasurer, the president of Palliative Care Australia Professor Patsy Yates has been selected to receive the International Nurse Researcher Hall of Fame Award.
The award, conferred by the USA based Sigma Theta Tau International Honor Society of Nursing (STTI), highlights Patsy Yates’ commitment to the field and the resulting benefits for patients and families, the profession and policymakers…read more
September 3, 2014
There has been an increase in the number of people recording their end of life wishes in Singapore.
According to The Straits Times, 1,800 people signed an Advance Medical Directive last year, up from 500 a decade ago. And more than 2,500 people applied for the Lasting Power of Attorney last year, compared to 655 people three years ago.
The article suggests that the rise can be attributed to greater awareness of these documents, and increasing ease and affordability of applying for them…read more
September 2, 2014
In this article, Lucy Watts writes about how she copes day-to-day living with a life-limiting condition and the importance of having someone to talk to. She introduced the concept of a “coping cliff” and explains it as “When I am struggling, and the problem(s) I’m dealing with are pushing the limit, I call it my coping cliff. Each problem/combination of problems takes me one step closer to the edge, and one problem or a combination of all my problems may push me off the edge.”
Suicide happens when people reach their coping limit. They fall off the edge, and they can’t get back. They can’t see an end to the pain/problem, they want to spare their family the burden of their illness and/or the problems they’re facing, and they want a way out; and they see the only option as suicide. This is why it is so important that we don’t let problems build up. We need to find things that work for us, find an outlet for our emotions and frustrations, find someone we can talk to, and find ways of coping.
If you are a friend or carer of someone who is ill or going through a hard time, and they confide in you, please listen and let them talk freely – whether you want to hear it or not. There often is not a solution to their worries, particularly when someone is ill – you are not being asked to solve their problem, but to listen and care. It is an honour that they have chosen you, because it takes a lot for them to make that step and be truthfully honest. Try to understand. Don’t tell them that they can’t think like that, they’ve got to be positive, or that they’re being dramatic…read more
September 1, 2014
Cambridge University Press and the editors of Palliative & Supportive Care are making available for free the journal’s top ten most cited articles until the end of September.
In celebration of an increase in Palliative & Supportive Care’s Impact Factor, the journal is offering complimentary access until 30 September 2014 to the top ten most cited articles contributing to 2013’s Impact Factor…read more