Paediatric Palliative Care Course in India

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Dear members and friends

Department of Palliative Medicine, Tata Memorial Centre, E Borges Road, Parel, Mumbai is organizing a Training program for doctors and nurses on Children’s Palliative Care (Paediatric Palliative Care). The total duration of the course will be 4 weeks. There would be 3 days of contact session from 1st to 3rd September 2015. The subsequent 2 weeks would be for assignments and case studies from home. The 4th week ( 21st to 25th September 2015) will be hands on training in the Department of Palliative Medicine, Tata Memorial Centre and LTMG Hospital, Sion, Mumbai. The exam will be conducted in October 2015. Tea and Lunch will be provided during 3 days of contact session.

For more information please contact Ms Melba at +91 9819826885.
Click here to download the programme schedule

Deadline for application: 16th August 2015.
Fees: Rs 2000/-.
Venue: 13th Floor, Lecture Hall, Homi Bhabha Block, Tata Memorial Centre, Parel Mumbai- 12, India
Dates to note: 1st, 2nd and 3rd September 2015
Time: 9.30 am to 4. 30 pm

Australasian Palliative Link International Forum: Mentoring into the Future

2015 APLI workshop program

The Australasian Palliative Link International will be having a forum on Monday 31 August, from 2.30 – 6.30pm. Anyone is welcome to join the forum. Registration is free!

Please RSVP your attedence by Friday 28th August.

APHN calling for volunteer writers for the website and monthly newsletter

sign-up-now

Dear palliative care workers and volunteers in the Asia Pacific Region, we are calling for volunteers to contribute your stories to our website and newsletter. We welcome any story that you will like to share with us.

This may include

  • Local news on palliative care developments in your country
  • Reports of  past or upcoming workshops, concerts, events and activities in your palliative care community
  • Stories on your work in palliative care, patient stories,
  • Sharing on what you do for self-care (like baking, going on holidays)
  • Patient cases that you will like to bring up for discussion with other palliative care experts
  • ANY OTHER STORY you will like to share

As long as you have an interest in finding out more about palliative care and have some free time to write, please feel free to drop us an email at aphn@aphn.org  or visit our website www.aphn.org to find out more!

If you will like to contribute on a regular basis, we also welcome you to join the APHN editorial team!

 

Practitioner Research & Learning Grants

Making All Voices Count invites applicants to apply for a Practitioner Research and Learning Grant to help you to reflect and learn from what you are doing in your work and adapt your initiatives as you learn. In addition to financial support, Making All Voices Count can provide research mentoring to support applicants to develop skills and engage in processes of critical enquiry and learning, to help them to improve their practice.

Making All Voices Count is a citizen engagement and accountable governance programme. It aims to harness the transformative potential of unusual partnerships and innovative applications of communication technologies to contribute to fundamental change in the relationship citizens have with the state. It focuses the majority of its work in six priority countries – Ghana, Indonesia, Kenya, the Philippines, South Africa and Tanzania.

Additional to funding creative and cutting edge solutions to these challenges, the programme offers an opportunity to build a unique base of evidence on what works in using technology for citizen voice, transparency and accountability, and on how and why it works.

We are interested in supporting research by and for practitioners on processes, projects, initiatives or aspects of practice that they are involved in, that try to strengthen citizens’ voice to get governments to respond to them and be accountable to them. Organisations and individuals are eligible for applying for Practitioner Research & Learning Grants.  We invite proposals of a cost up to £25,000 for research and learning projects, of a minimum of 3 months to a maximum of 12 months.

There is a two stage application process for Practitioner Research & Learning Grants, the development of the budget will form part of the 2nd stage where a mentor will work with you to develop full proposal including budget and project plan. We would encourage applicants to budget for what is required rather than applying for the maximum.

Making All Voices Count is planning to fund up to eight practitioner research & learning grants through this call for proposals. However, we reserve the right to award fewer if we do not receive sufficient applications that meet the standard required.

Applicants should complete the Making All Voices Count Practitioner Research and Learning Grant Application Form and submit via email to practice-research@makingallvoicescount.org. The closing date for submissions is 10:00am (BST) on 14 August 2015. Any applications received after the submission deadline will not be considered.

Read more about the grant here.

1st Training for teachers in Palliative Care at Hospis Malaysia

Hospis MalaysiaTRAINING FOR TEACHERS IN PALLIATIVE CARE (July 26 – 31) – Discounted rates for APHN members!!

Palliative Care professionals are trained to provide care for patients and their families. However, they are often required to teach others formally as part of their duties. Most however have had no formal training in teaching.

This well established and internationally renowned course, conducted by the Marie Curie Palliative Care Institute Liverpool, United Kingdom and Hospis Malaysia focuses on how to teach and not what to teach which enables you to examine adult educational theory and explore in practice using a range of teaching methods and delivery skills. This course has been specifically designed for healthcare professionals working in palliative care.

You will be encouraged to design and develop learner centered education and explore how to adapt your teaching to meet the needs of various audiences. This intensive and experiential workshop will be conducted by Dr Ruthmarijke Smeding, Professor John Ellershaw from Liverpool, and Dr Ednin Hamzah from Hospis Malaysia.

Registration fees are RM950 (USD300) and RM800 (USD250) for APHN members. Registration can be made online at our website www.hospismalaysia.org. The workshop will take place at Hospis Malaysia and will be limited to 20 places only.

For further enquiries, kindly contact Wai Mun at telephone: +603 9133 3936 extension 267 or email to education@hospismalaysia.org

Scholarships for physicians in developing countries

220515The American Academy of Hospice and Palliative Medicine (AAHPM) has announced Scholarships for Physicians in Developing Countries to attend next years’ AAHPM and Hospice and Palliative Nurses Association (HPNA) Annual Assembly in the US. The Developing Countries Scholarship Fund was established to provide access to quality education for physicians who reside in developing countries by helping them attend the AAHPM and HPNA Annual Assembly.

This scholarship program provides financial support (up to $5,000) to physicians to help them access the latest clinical information and research updates in hospice and palliative care from leading experts in the field.

Eligibility

Scholarships are available to physicians who care for seriously ill patients and permanently reside and practice in a developing country. It is our hope that the scholarship recipients will share the knowledge gleaned from the Annual Assembly to improve the palliative care offerings in their home country. Preference will be given to applicants who are

  • members of the AAHPM. Free online membership is available to physicians who reside in a developing nation as defined by the World Bank as “lower or middle income” & HINARI list of eligible countries
  • have not previously attended the Annual Assembly
  • are junior in their career; and
  • whose organizations are considered least able to afford this opportunity.

Instructions

Applications for the are now open till August 3, 2015. If you are having trouble with the applications link, access the Word application.

Scholarship recipients will be asked to participate in a discussion forum during the Annual Assembly to share the practice of hospice and palliative medicine in their country and will also be required to submit a written report describing how their attendance at the Annual Assembly benefited their work. Scholarship recipients will be required to secure their own visa. Applicants will receive notification from AAHPM confirming their application has been received… read more

Contact Jen Bose at +01 847 375 3688 or jbose@aahpm.org with any questions.

From ehospice

Introducing APHN new 15th Governing Council

15th Council

Back row: Mr Kwan Kam Fan, Dr Jeanno Park, Dr Maria Witjaksono, Dr Chun-Kai Fangl, Dr Priyadarshini Kulkarni, Dr Richard Lim, Dr Annie Kwok, Prof Yoshiyuki Kizawa, Prof Satoru Tsuneto, Dr Chong Poh-Heng
Seated: Dr R Akhileswaran, Dr Sushma Bhatnagar, Prof Cynthia Goh, Prof Tetsuo Kashiwagi (Stepped down from 15th Council), Dr Ednin Hamzah 
Absent with apologies: Prof M R Rajagopal, Dr Ghauri Aggarwal, Prof Patsy Yates, Dr Yvonne Luxford, Prof Hyun Sook Kim, Dr Jun-Hua Lee

NAME APPOINTMENT MEMBERSHIP (SECTOR)
Associate Professor Cynthia Goh Chairman Elected (Singapore)
Dr Ednin Hamzah Vice-Chairman Co-opted (Malaysia)
Professor M R Rajagopal Vice-Chairman Co-opted (India)
Dr Ghauri Aggarwal Honorary Secretary Co-opted (Australia)
Dr R Akhileswaran Assistant Honorary Secretary Elected (Singapore)
Prof Patsy Yates Honorary Treasurer Appointed (Australia)
Mr Kwan Kam Fan Assistant Honorary Treasurer Appointed (Hong Kong)
Dr Priyadarshini Kulkarni Member Appointed (India)
Dr Maria Witjaksono Member Appointed (Indonesia)
Professor Satoru Tsuneto Member Appointed (Japan)
Dr Jeanno Park Member Appointed (Korea)
Dr Richard Lim Member Appointed (Malaysia)
Dr Yvonne Luxford Member Elected (Australia)
Dr Annie Kwok Member Elected (Hong Kong)
Professor Yoshiyuki Kizawa Member Elected (Japan)
Professor Hyun Sook Kim Member Elected (Korea)
Dr Chun-Kai Fang Member Elected (Taiwan)
Dr Sushma Bhatnagar Member Co-opted (India)
Dr Chong Poh Heng Member Co-opted (Singapore)
Dr Jun-Hua Lee Member Co-opted (Taiwan)

Chairs of APHN committees

Communications: Dr Chun-Kai Fang (Taiwan)

Education: Dr Ednin Hamzah (Malaysia)

Finance: Prof Patsy Yates (Australia)

Human Resource: Mr Kwan Kam-Fan (Hong Kong)

Membership : Dr Annie Kwok (Hong Kong)

Research: Dr Sushma Bhatnagar (India)

Chairs of APHN Special Interest Groups (SIG)

Paediatric Palliative Care: Dr Chong Poh Heng (Singapore)

Pacific Islands: Dr Sue Marsden (New Zealand)

China: Dr Rico Liu (Hong Kong)

Advisory Council (By invitation)

Chair: Prof Tetsuo Kashiwagi (Japan)

Member: Prof Enoch Lai (Taiwan)

Member: Prof Young Seon Hong (Korea)

ALL committee and groups are open for APHN members to join (except finance committee). Please feel free to email the APHN Secretariat at aphn@aphn.org or call +65 6235 5166 to indicate your interest if you will like to be part of the APHN committee or SIG!!

Asia Pacific Hospice Palliative Care Network and Palliative Care Australia : Syringe Driver Exchange Programme

With the phasing out of Graseby syringe drivers in Australia with the introduction of alternatives, significant numbers of these useful devices could be made available for palliative care services in the region.  The Asia Pacific Hospice Palliative Care Network (APHN) and  Palliative Care Australia (PCA) propose a mechanism whereby a palliative care institution (APHN Organisational Member) initiates a request to APHN by filling in the details below. Successful applicants will be informed and PCA will connect them to a donor service in Australia. This arrangement hopes to facilitate a donation of useful syringe devices across international boundaries as well as networking.

Invitation to bid – 13th Asia Pacific Hospice Conference 2019

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The APHN Council is pleased to invite member organizations wishing to host the 13th Asia Pacific Hospice Conference 2019 to send in their application to the APHN Secretariat.  Closing date for submission of application and bid documents has been extended till Friday, 31 July 2015.

Click here to download the bidding document template and the procedure for application.

Please email the bidding document to aphn@aphn.org.

Please note to send your file as “Bidding document for 13th APHC_<your organization name>”

 

1st Online forum Discussion on Paediatric Palliative Care

Poster

APHN has set up our very own online forum platform for discussion on palliative care issues. We hope the forum can serve as a contact point to link individuals involved in palliative care to foster collaboration, share knowledge and start discussions in this area. The 1st forum discussion topic will focus on Paediatric Palliative Care. The forum will be accessible for members to log in from 31 January. Click here to view the forum.

 

Update on WHO palliative care spreadsheet

20140124-02The WHO palliative care spreadsheet, dated July 2015 is available on the website for reading. Some of the key facts in palliative care highlighted are

  • Palliative care improves the quality of life of patients and their families who are facing problems associated with life-threatening illness, whether physical, psychosocial or spiritual.
  • Each year, an estimated 40 million people are in need of palliative care, 78% of them people live in low- and middle-income countries.
  • Worldwide, only about 14% of people who need palliative care currently receive it.
  • Overly restrictive regulations for morphine and other essential controlled palliative medicines deny access to adequate pain relief and palliative care.
  • Lack of training and awareness of palliative care among health professionals is a major barrier to improving access.
  • The global need for palliative care will continue to grow as a result of the rising burden of noncommunicable diseases and ageing populations.
  • Early palliative care reduces unnecessary hospital admissions and the use of health services.

The Global atlas of palliative care at the end of life, published by the WHPCA and WHO is also available to be downloaded at the website. The purpose of the Atlas is to shine a light on the need for palliative care globally and to provide useful information for those wishing to increase access. This document addresses the following questions:

What is palliative care? Why is palliative care a human rights issue? What are the main diseases requiring palliative care? What is the need for palliative care? What are the barriers to palliative care? Where is palliative care currently available? What are the models of palliative care worldwide? What resources are devoted to palliative care? What is the way forward?

Hospice and Palliative Care Services in South Korea Supported by the National Health Insurance (NHI) Program

Rhee, Y. (2015) Hospice and Palliative Care Services in South Korea Supported by the National Health Insurance (NHI) Program. Health, 7, 689-695

Previous main body of research on end-life-care in South Korea has focused on developing services quality in hospital settings or service payment system in National Health Insurance Program. The delivery system of hospice and palliative care services has evolved in diverse ways but there is little research on reviewing the past history of development and whole picture of them so far. So, the aim of this study is to review the old hospice and palliative care system and also to introduce the current one supported by the National Health Insurance Program in South Korea. The palliative care or hospice services in South Korea have been available in diverse settings and provided by different organizations (i.e. catholic hospitals or charity organizations). Finally, it was set up in 2004 that the hospice team or official Palliative Care Units (PCUs) was established in hospitals, in order to meet the end-of-life care for the patients with terminal cancer under the Cancer Control Act. The current hospice and palliative care services such as pain management, bereavement services, and counselling can be reimbursed by National Health Insurance program since 2008. Nevertheless hospice and palliative care services are available to dying patients, yet the utilization rate of hospice and palliative care services or the length of stay in the palliative care unit (PCU) is still relatively short compared to other country systems. South Korea is undergoing several efforts to expand the services in PCU along with the development of quality indicators for PCU. Hospice and palliative care services are still new in the health care system and unfamiliar to the public so it requires raising awareness for medical professionals and the public as well as further research.

Click here to read the full paper.

From Health

 

Out-of-hours Palliative Care

280715After-hours or Out-of-hours (OOH) services are an integral component of community palliative care. Various models of OOH care are presented, and experiences of patients, carers and medical professionals studied. Challenges and barriers are explored in a discussion to refine OOH care so as to better meet the multi-faceted needs of patients at the end of life.

Opioid Proice Watch Project – Opportunity to participate

230715July 18, 2015 (Houston TX) – The International Association for Hospice and Palliative Care (IAHPC) has launched the second round of Opioid Price Watch (OPW), a project to monitor and report the dispensing price of opioids around the world. This project is as a component of the agreement of work as an NGO in formal relations with the World Health Organization (WHO). This project was funded with a seed grant from the US Cancer Pain Relief Committee.

IAHPC developed and implemented a pilot in 2013 to test OPW and reported the information collected on the availability, prices and affordability of 5 opioids (fentanyl, hydromorphone, methadone, morphine, and oxycodone) in 13 formulations. The pilot project was completed in 2014 and the report published in the Journal of Pain and Symptom Management available free to all (Open Access). The published report presents data on availability, dispensing prices and affordability submitted by 30 participants from 26 countries.

Using the data on availability and dispensing prices, IAHPC calculated the affordability of a one 30 day treatment of morphine and developed a Google map housed in the IAHPC website.

In this second round, individuals from all over the world will be collecting data on the availability and dispensing prices of opioids and submitting it to IAHPC. Individuals interested in participating in this second round of OPW will receive three months of free IAHPC membership!

To participate in this exciting project and take advantage of a unique opportunity to be part of a strategy to increase awareness about access to pain treatment around the world, or to learn more about OPW contact Dr. Sammi Ebtesam Pharm D., OPW coordinator opwproject@gmail.com

From IAHPC

Bursaries announced for Hospice23 conference

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Hospice23 has announced bursaries for their upcoming conference to take place from Friday 16 October 2015 to Monday 19 October 2015 in North Devon, UK.

The conference will focus on the theme: ‘Compassionate Care? Exploring how we provide compassionate care in today’s high pressured world.’

The aim is to allow you to return to your own place of work affirmed, with new ideas, invigorated, motivated and refreshed…read more 

You can find out more about the event and access the conference programme on the Hospice 23 website.

Hospice 23 are inviting participants from any country to apply for a bursary to cover the cost of conference attendance. Contact Catherine D’Souza to find out how to apply.

From ehospice

Love, care and compassion – the legacy of Dame Cicely Saunders

150715“You matter because you are you.” – Dame Cicely Saunders

Dame Cicely Saunders, founder of the modern hospice movement and St Christopher’s Hospice in the UK, died ten years ago today. This remarkable lady, who was trained as a nurse, social worker and doctor, died on 14 July 2005, at the age of 87 in her own St Christopher’s Hospice.

As well as being a one-woman multidisciplinary team, Dame Cicely was an excellent teacher and mentor, guiding those we know today as worldwide leaders in hospice and palliative care.

She was also a prolific writer, publishing books, letters and academic journal articles, some of which are freely available online, while much of the rest is housed in an archive of materials – co-curated by Professor David Clark – at the Cicely Saunders Institute in London, or in the Library at St Christopher’s Hospice.

As well as containing the results of her research, through her academic writing we can trace a history of Dame Cicely’s working life. In her article, The evolution of palliative care, she outlines the evidence base that was the start of her early research on the final stage of life, mainly of cancer patients…read more

From ehospice

Speak up for patients in pain ahead of UNGASS 2016

100715The UN General Assembly Special Session (UNGASS) on drugs will take place in April 2016. The UNGASS will review progress toward achieving the goals of the 2009-2019 global drug strategy, and the limited availability of opioid analgesics in much of the world will be one of the topics on the agenda.

The problem of lack of access to essential medications for pain relief has left millions of people worldwide to suffer needlessly. The UNGASS is a major opportunity for the palliative care community to ensure that the UN acts to resolve this longstanding problem.

What is happening?

Preparations for UNGASS have already begun. The international community has decided that the UNGASS will adopt a “short, substantive, concise and action-oriented document comprising a set of operational recommendations…including…ways to address long-standing and emerging challenges in countering the world drug problem” (UNODC).

The Commission on Narcotic Drugs, which is leading the process, has asked countries to submit their priorities for this outcome document by September 11, 2015.

What needs to happen?

There will be a number of other topics on the agenda, such as drug prevention and treatment, HIV prevention, drug-related crime, money laundering and international cooperation on criminal matters. These are bound to occupy a lot of time and discussion.

It is critical that the availability of controlled medicines gets the attention it needs and deserves. This is one area in which the international community should be able to come together in agreement.

To pave the way for pain relief to be available to all who need it, UNGASS should mandate the development of an action plan to address the limited availability of controlled medicines in much of the world.

The plan, to be developed by the World Health Organization, the UN Office on Drugs and Crime, International Narcotics Control Board, UN member states and civil society, should set specific objectives, commitments and measurements.

To achieve this, it is essential that as many countries as possible list the development of an action plan on controlled medicines as one of their priorities for the UNGASS.

What can you do?

It is critical to find out who the key decision makers in your country are and to brief them. International palliative care advocates have prepared a selection of excerpts from UN documents relevant to the UNGASS process, as well as recommendations and draft language for UNGASS 2016 Outcome Document on Controlled Medicines. These documents are designed to help you brief the government officials from your country who are involved in preparations for the UNGASS.

You can contact your health ministry, foreign ministry, drug control agency, interior/home ministry, justice ministry or other relevant authorities, to make sure that your country’s delegation includes the development of the action plan on controlled medicines as one of their priorities.

To find out who to approach, you can access this list of delegations to the 2015 session of the Commission on Narcotic Drugs to help determine which ministries and officials from your country are likely to be involved in the UNGASS process.

Do you need more information?

For more information on the UNGASS, please see the following resources:

  • the official UNGASS website; and
  • the International Drug Policy Consortium’s website.

If you need any further information and want to discuss how best to engage your countries’ officials, please contact:

  • Diederik Lohman at Human Rights Watch, who is co-ordinating the efforts with UNGASS, at lohmand@hrw.org
  • Stephen Connor, guiding the WHPCA response, at sconnor@thewhpca.org.
From ehospice

Lien Collaborative for Sri Lanka Module 3 of 5 – The trip report

Large group discussions
Bedside teaching in Oncology ward at National Cancer Institute, Maharagama
Group photo at Distric Hospital in Vauniya, Northern province of Sri Lanka
Visiting a ward in District Hospital, Vauvniya
Palliative Care Unit and referral centre at District Hospital, Vauvniya

Case discussion with visiting faculty

New hospice at Cheddikulam, Northern province to open in August 2015

Patients gathering at the prayer area to fold lantern wicks at Cancer Care Hospice in Kurundankulama, Anuradhapura, Northern Province

The 3rd module of the Lien Collaborative for Palliative Care – Training of Trainers in Palliative Care Programme for Sri Lanka took place from 29th June to 3rd July this year at the National Cancer Institute, Maharagama in Colombo. The faculty comprise of 4 doctors and 2 nurses from Singapore and Australia. They are Associate Professor Cynthia Goh (Project Lead), Associate Professor Ghauri Aggarwal (Country Lead), Dr Allyn Hum, Dr Suharsha Kanathigoda, Mr Joshua Cohen, and Ms Peggy Chen.

The key topics covered in the teaching included service development, care for non-cancer patients, ethical issues in palliative care, symptom management and scope of palliative care.

The teaching model consists of large group and small group discussions, lectures, case discussions and ward rounds. In addition to those, a brainstorming session on the last day was added into this module to discuss learning points of the programme and for participants to provide feedback and ask questions. Many questions were raised and everyone wished that this session could have been even longer. The participants were interested for more information on the issues facing them in providing care and to discuss the challenges when starting palliative care services in Sri Lanka.

We had the opportunity during this module to visit the newly set up hospices and palliative care services around Sri Lanka. On the 4th of July, the team went to the District Hospital in Vavuniya, located in the Northern Province of Sri Lanka. There are currently no separate palliative care unit with full time doctors and nurses in the hospital. However, one of our module participants, Dr Ranjan Mallawaarachchi, an oral and maxillofacial (OMF) surgeon at the hospital, has established a team within the OMF unit to care for patients who needs palliative care. He has also founded the Regional Association for Palliative Care – Northern Province to work on developing palliative care services in Sri Lanka.

The team also went to visit a hospice set up by Dr Ranjan and his team in Cheddikulam, the Northern province of Sri Lanka. According to Dr Ranjan, the service will open in August this year. We are all excited and looking forward to it. As palliative care is something new to many in Sri Lanka, creating awareness and trust among healthcare professionals is important to get referrals for admission to the hospice.

Another hospice which we visited is the Cancer Care Hospice. According to Dr Samadhi W.Rajapaksa, director of the Cancer Care Association, there was no doctor willing to refer their patients to the hospice until the director of a hospital was convinced by him and came personally to admit the first patient.

As the palliative landscape in Sri Lanka continues to develop, both the government and non-profit organizations are working hard to increase awareness of palliative care among the healthcare workers and members of the public. Relative to the need, there are only a few institutions providing palliative care or hospice services in the country. Palliative Care is not yet an established medical or nursing specialty in Sri Lanka.  The APHN hopes to continue to engage and support the various initiatives to strengthen the development of palliative care in Sri Lanka.

If you will like to contribute to the Lien Collaborative for Palliative Care, we welcome you to email us at aphn@aphn.org and visit our website http://aphn.org/lien-collaborative-for-palliative-care/ to find out more.