September 1, 2014 Leave a comment
October 21, 2014
The Online Support Platform is a world first, designed to support young people affected by cancer, be they patients themselves, friends or relatives of others who have the disease, or associated with those who may have died from it.
CanTeen targets and assists the 12 to 24 year old element of Australian society.
The site has been designed by young people living with cancer. It is hoped it will be beneficial for teenagers and young adults in regional or remote Australia, alleviating their need to travel to meet other young people or a counsellor face-to-face…read more
October 20, 2014
Through Hospice, Sandra found her courage to deal with the difficult things.
Through Hospice, we, as a family also found the courage to deal with them.
My sister in law hated red. She hated it in all its forms. Red hair, red curtains, red towels, red flowers. Didn’t matter what it was, if it was red….she didn’t like it. Imagine her chagrin when the one wheelchair we got from Hospice was red! I tried to lighten the mood by charging into the house and announcing that I had brought her, her very own red Ferrari! ……………I suffered almost a minute of the most withering glare she could muster before she allowed us to get her into the chair to go to the doctor…read more
October 17, 2014
Palliative Care Australia’s National Standards Assessment Program (NSAP) will soon publish an evaluation report on its year-long project aimed at improving the assessment, planning and delivery of support to meet the needs of palliative care patients’ carers.
The project is the second carried out under NSAP’s Continuous Quality Improvement (CQI) Collaborative Project (CP). It reflects the acknowledgment of the importance of identification, not only by patients of their carers but also of the need to clearly establish carers’ roles and identify their specific needs…read more
October 16, 2014
Recent counts of the scale of the Ebola outbreak put the number of confirmed, suspected and probable cases of Ebola in the worst affected countries at 8,033, with 3,879 recorded deaths (Reuters).
As one article in the New England Journal of Medicine reports: “As yet, there is no persuasive evidence that the epidemic is under control” (Briand et al., 2014: p1181). It is clear that many months of coordinated effort by health care workers properly trained, protected and supported are ahead.
Although there is no known vaccine or cure for Ebola, the steps recommended by WHO and other international health organizations to reduce mortality are through supportive care and community education. Both of these areas are core competencies of those trained in palliative care…read more
View powerful photo essay by the New York Times: Life, Death and Grim Routine Fill the Day at a Liberian Ebola Clinic
Read more about Ebola:
Ebola 2014 — New Challenges, New Global Response and Responsibility
Ebola Virus Disease in West Africa — No Early End to the Outbreak
Face to Face with Ebola — An Emergency Care Center in Sierra Leone
A Good Death — Ebola and Sacrifice
October 15, 2014
THAILAND | The Bangkok Post – 11 October 2014 – The Public Health Ministry will extend palliative care for terminally ill people to cover all of its 16 hospitals from seven at present. Minister Rajata Rajatanavin said the Medical Services Department would develop a system and standards of care for terminally ill patients to suit each disease and each type of medical facility… Standardised services including pain management and palliative care, as well as mental and spiritual advice, will be provided to help both patients and their relatives. Suphan Srithamma, directorgeneral of the department, said seven of its facilities had offered palliative care in their quality-of-life wards for the past 10 years…read more
An article from Media Watch, compiled and annotated by Barry R. Ashpole (Ontario, Canada). More reports can be found at IPCRC.NET
October 14, 2014
“In a powerful documentary, The Pain Project, India’s leading palliative care specialist, Dr. M. R. Rajagopal, explains that India’s narcotic regulatory agencies are so irrationally stringent that in 27 of the country’s 28 states doctors simply avoid prescribing morphine for cancer pain, for fear of running afoul of the law,” writes Ronald Piana in the article Dying Without Morphine, published in the New York Times on September 30, 2014.
The author notes that despite the World Health Organization’s statement that access to pain treatment, including morphine, is an essential human right, about six million terminal cancer patients around the world endure suffering because they do not have access to morphine…read more
From Pallium India
October 13, 2014
Sri Lanka | To commemorate the World Hospice and Palliative Care Day 2014, the Ministry of Health and Sri Lanka Medical Association organized a join activity which took place on 9 October, 2014. Dr Eshani Fernando (Director, National Cancer Control Programme – NCCP , Ministry of Health), started off the event with a welcome speech. The highlights of the activity were the 2 technical sessions, namely, “Development of Palliative Care in Medical Practice in Sri Lanka” and “Strengthening Palliative Care beyond Medical Practice”. In session 1, invited speakers from the National Cancer Institute of Sri Lanka spoke about Palliative Care in different settings such as in a non-cancer setting or oncology setting. Palliative Care nursing, social services support, hospices and home-based palliative care topics were also presented to the participants in Session 2.
APHN would like to share some pictures of the event with all our members and friends in the region. We would like to invite you to share your moments of celebration with us. Do drop us an email at firstname.lastname@example.org so that we can feature more World Hospice and Palliative Care Day celebrations!
斯里兰卡|为纪念2014年世界纾缓关怀日，卫生部和斯里兰卡医学协会在2014年10月9日共同举办了一个活动。活动由 Dr Eshani Fernando（国家卫生部癌症控制计划 – NCCP 主任）揭开序幕，为在场的观众致辞。活动的亮点在当天所举办的两个技术会议上。它们分别是 “Development of Palliative Care in Medical Practice in Sri Lanka （姑息治疗在斯里兰卡的发展）” 和 “Strengthening Palliative Care beyond Medical Practice （加强姑息医疗在医学范畴外的发展）” 。活动还特地邀请了来自斯里兰卡国家癌症研究所的代表分享他们的经验。姑息护理治疗，社会服务的支持，安宁疗养院和以家庭为基础的姑息治疗也是该活动所探讨的一些话题。
APHN 希望与所有的会员分和朋友享活动的照片。我们也想借此机会邀请您与我们分享任何在亚太地区举办的世界纾缓关怀日庆祝活动。请电邮至 email@example.com 联系我们！
October 10, 2014
Researchers at King’s College London recently carried out a review into the use of outcome measures in palliative care. Writing for ehospice UK, one of the researchers, Dr Fliss Murtagh, explains what they found.
“This work is important, because we need to know how our care helps, what components of our care make the most difference, and whether this care meets the needs of patients and families well.”
A systematic review of the literature found strong evidence that using outcome measures and feeding back that information to staff improved the processes of care – including better symptom recognition, more discussion of quality of life, and increased pertinent referrals for further help…read more
Access the research paper here.
October 9, 2014
“The sky’s awake so I’m awake and I have to play.” So says Princess Anna in the popular Disney animated movie Frozen. Children don’t only have the right to play, they need to play and this need does not go away because a child has a life limiting or life threatening illness. These children need to play more than most in order to find ways to process and understand what they are experiencing.
A special edition of Children – Open Access Pediatrics Journal entitled The Role of Play in Children’s Health and Development has recently published a paper entitled The Role of Play in Children’s Palliative Care. The paper’s authors are Sue Boucher (ICPCN); Prof Julia Downing (ICPCN) and Rise Shemilt (Gaddum Centre)…read more
October 8, 2014
Linking to World Hospice and Palliative Care Day on 11 October, the ICPCN would like to use the entire month of October to run the #Hatsonforchildrenshospicecare social media campaign that not only raises awareness of children’s palliative care but also recognises the various and valuable members of a children’s palliative care multidisciplinary or interdisciplinary team, all of whom work together to provide holistic and coordinated care to the child and to the family.
Author Jeff Dixon once said: “You can’t do everything; but you can do something.” ICPCN has supplied a list of things that you can do in October to show your support for this campaign and possibly win a prize of one of three $25 Amazon vouchers. Here are some suggestions:
- Support the campaign on your social media pages
- Give a donation
- Raise funds by hosting or organising an event
If there are no services close to you, you may consider a donation to the ICPCN. The ICPCN carries out vital work developing, supporting, educating and networking children’s hospice and palliative care services around the world…read more
October 7, 2014
In September 2012, HRH The Duchess of Cambridge, Kate Middleton visited Hospis Malaysia in Kuala Lumpur and gave her first speech overseas to lend support to the development of paediatric palliative care here in Malaysia. Dr Chong Lee Ai reports on the progress made since that visit and the recent training in paediatric palliative care held in Malaysia through this article.
Hospis Malaysia has been organising the annual Paediatric Palliative Care Workshop since 2012 to provide education and training for providers in Malaysia and the Asia Pacific region. This year we had 2 experienced advocates and practitioners as our speakers and facilitators. Joan Marston, the executive director of ICPCN is no stranger to Hospis Malaysia. Joan was instrumental in helping us organise our inaugural workshop in 2012. Dr Anthony Herbert is an experienced paediatric palliative care consultant from Royal Children’s Hospital, Brisbane, Australia.
We hope the workshop will encourage and strengthen the participants’ resolve to enhance awareness and change practices at their workplace. Children and families do not need to suffer needlessly because of healthcare professionals’ ignorance…read more
October 3, 2014
SINGAPORE|Channel NewsAsia – In July this year, the Ministry of Health (MOH) started funding home palliative care providers for every patient under their care on a monthly basis. Some providers have said they are receiving twice what they used to in funds since the new funding model kicked in.
Home palliative care providers that Channel NewsAsia spoke to said this increased stream of funding has allowed them to launch new services, increase capacity and be more flexible with resources…read more