LCPC-APHC-SHC Workshops 2017

LCPC-APHC-SHC Workshop 2017 - A Holistic Assessment of PatientsLCPC-APHC-SHC Workshop 2017 - The Role of a Pharmacist in Palliative Care

Dear colleagues

LCPC will be hosting two conference workshops during the APHC 2017 in July. Registrations are opened now!

Abstract Submission for APHC 2017

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Dear Colleagues

The 12th Asia Pacific Hospice Conference (APHC) 2017 will be accepting abstracts for poster and/or oral presentations till 18 February 2017, 23:59 (GMT+8). You may wish to read more on the criteria and submission details here.

We look forward to seeing you at the 12th APHC in July!

APHN – Hospis Malaysia Palliative Care Workshop: Palliative Care Nursing

APHN-Hospis Malaysia Workshop

WORKSHOP OF PALLIATIVE CARE NURSING (18-19 February 2017)

It is crucial that healthcare providers involved in palliative care services possess the necessary skill and knowledge to ensure that holistic patient-centred care is never compromised. Palliative nursing care kick starts our first module of our palliative care workshops every year.

This 2-day workshop addresses topics on patient assessment, wound management, use of syringe driver, communication and the entire spectrum of patient care which is vital towards ensuring patients receive the due care they need in their place of care.

For further information, please contact Wai Mun at 03 – 9133 3936 (ext: 267) or email  education@hospismalaysia.org

What happens when palliative care intersects with other specialties?

Loving Brandon was hard. Not because of Brandon – he was a beautiful boy. He had beautiful eyes and a gentle heart.  He loved massages and his face lit up during sensory therapy. He also had severe brain damage and limited ability to communicate. We could never know for sure how much he did or didn’t understand, but we feel certain he knew his people and he understood love.

Loving was not hard because of Brandon. It was hard because it hurt so badly to watch him suffer. On top of his severe cognitive challenges, Brandon had a contagious respiratory infection. That meant there were lots of rules around how and where he could be cared for. The rules came from a good intentions –  intentions to help cure and to protect others from infection. But for a child who already has a life limiting condition, those rules were pretty hard to understand.

Brandon only had a small circle of people who really knew him. He couldn’t speak up like a typical kid and tell someone when he was hurting, sad or sick. It broke our hearts when he moved to a specialty  respiratory diseases facility, even though it made sense medically. We knew that no treatment on earth could offer him a long life, so we wished for his remaining time to be peaceful. We wanted him to have security, comfort and a predicable routine – things we knew were important to him.  But treatment for his respiratory condition plunged him into a new routine, a new system, and left him surrounded by strangers. Kind strangers for sure – but they didn’t know Brandon.

There are no easy answers in palliative care.  Brandon’s story will always break our hearts. We are thankful we were able to visit with him in his isolation unit, but incredibly sad he was not at home when he died. These situations push us to keep talking, keep asking ourselves the hard questions – what happens when palliative care intersects with other specialty areas? Sometimes different branches of health care  act in synergy –  mental health, physiotherapy and many other specialties are vital components of end-of-life care. But sometimes it’s not so simple. The right thing in one book is not the right thing in another. We are so grateful that these discussions are part of medical practice these days. Our hard conversations belong to a wider debate. Scientists and doctors around the world are studying and talking about these issues.

For us, right now, we are feeling sad that Brandon has died without returning home. We wonder if we failed him somehow, if we could have changed things. It’s a pretty normal part of grief to ask these questions, but its also part of understanding and processing this painful sorrow.  By seeking to understand, we are seeking to find a way forward,  to figure out what our hearts say about some of those hard questions. Sure, there’s a whole lot of research going on – but sometimes what your heart tells you makes a lot of sense.

For us, right now, our hearts are feeling incredibly sad.

The article above is republished with permission from Butterfly Children’s Hospice. Read other articles at their blog here.

16th Governing Council and call for working committee volunteers

The 16th governing council of the Asia Pacific Hospice Palliative Care Network (APHN) was formed at our annual meeting in Hue, Vietnam, this year. The APHN provides you with many opportunities to get involved and influence the future of the field. Volunteering is a good way for networking and building friendships that will last a lifetime.

Get Involved

Before the start of 2017, we will like to hold a Call for Volunteers seeking members who are looking to get involved in APHN. There are 3 main types of volunteering opportunities for you to consider.

  1. Committees: to advance specific committee charges
    • Education
    • Research
    • Communications
    • Membership
  2. Speical Interest Groups: to be involved in specific advancements of
    • Pacific Islands Special Interest Group
    • Paediatric Palliative Care Special Interest Group
    • China Special Interest Group
  3. APHN Editorial Board: to write and review with APHN publications such as the monthly newsletter

If you are interested, do email Joyce at aphn@aphn.org with your interested position and your CV.

The Governing Board and Working Committee

cynthia-goh Associate Professor Cynthia Goh (Singapore)

Chairman

Overall Project Lead, Lien Collaborative for Palliative Care

 Professor Hyun Sook Kim Professor Hyun Sook Kim (Korea)

Vice-Chairman

 dr-ednin-hamzah Dr Ednin Hamzah  (Malaysia)

Vice-Chairman

Chair, Educations Committee

  Associate Professor Ghauri Aggarwal (Australia)

Honorary Secretary

Co-Leader, Lien Collaborative for Palliative Care (Sri Lanka)

 r-akhileswaran Dr R Akhileswaran (Singapore)

Assistant Honorary Secretary

 fan Mr Kwan Kam Fan (Hong Kong)

Honorary Treasurer

Chair, Finance Committee

Chair, Human Resource Committee

 BD_Chong_Poh_Heng Dr Chong Poh Heng (Singapore)

Assistant Honorary Treasurer

Chair, Paediatric Palliative Care Special Interest Group

 priya Dr Priyadarshini Kulkarni (India)

Council Member

 maria Dr Maria Witjaksono (Indonesia)

Council Member

 tsuneto Professor Satoru Tsuneto (Japan)

Council Member

 jeanno-park Dr Jeanno Park (Korea)

Council Member

 richard-lim Dr Richard Lim (Malaysia)

Council Member

 patsy-yates Professor Patsy Yates (Australia)

Council Member

 annie Dr Annie Kwok (Hong Kong)

Council Member

Chair, Membership Committee

 prof-kizawa Professor Yoshiyuki Kizawa (Japan)

Council Member

Member, Communications Committee

 amy_chow Associate Professor Amy Chow (Hong Kong)

Council Member

Member, Communications Committee

 chun-kai Dr Chun-Kai Fang (Taiwan)

Council Member

Chair, Communications Committee

 Sushma Dr Sushma Bhatnagar (India)

Council Member

Co-leader, Lien Collaborative for Palliative Care (Bangladesh)

Chair, Research Committee

 srivieng Associate Profesor Srivieng Pairojkul (Thailand)

Council Member

 dr-jun-hua-lee Dr Jun-Hua Lee  (Taiwan)

Council Member

Member, Communications Committee

 rico-liu Dr Rico Liu (Hong Kong)

Chair, China Special Interest Group

Presentations available for download from 5th International African Palliative Care Conference

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Download the presentations from the 5th International African Palliative Care Conference, hosted in Kampala, Uganda from 16-19 August today! It is FREE!

The conference programme is available here, with access to corresponding presenter Powerpoints and video presentations, outlined below:

From ehospice

 

Starting conversations is key to better patient outcomes

In an article by The West Australian News, “Confronting mortality and dying well”, Dr Blackwell recalls his experience as a carer for his wife, instead of a palliative care doctor.

“…It was the start of a five-year process he calls the “conversation” — where doctors and family are encouraged to discuss openly the best treatment options, even the “do nothing” plan…He remembers the highs and lows of the next four years, as they balanced the need to have the best possible drugs and therapy while having good quality of life for his wife…”

Here are some points noted in the article which we will like to share with you

  • End-of-life care is about a person, not their tumour marker score. The best indicator to measure the success of that process is how well the family grieves after their relative has died.
  • Doctors can fall into the trap of being blinkered by ordering tests and procedures for the frail and elderly, doing what they are comfortable with, rather than what is best for the patient

Read the full article here.

Screening of the APHN-LCPC movie “Life asked Death” in the region

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Thank you for the support towards the screenings of the APHN-LCPC movie “Life asked Death” in the region!

The highly anticipated movie “Life asked Death” was shown in regions such as, Dhaka, Myanmar, Philippines and Sri Lanka in events held in conjunction with the World Hospice and Palliative Care Day.

Bangladesh

The screening on 8 October 2016 in Dhaka, Bangladesh, part of the LCPC project,  attracted 450 people, where the Director General of Department of Narcotic Control and the President and Secretary-General of the Bangladesh Medical Association attended. Many of the audience and media present at the screening were emotional upon seeing the pain of patients featured in the movie. Palliative care, which was previously little known among doctors in Bangladesh, is now starting to gain awareness as Dhaka Tribune was also present to cover the screening. Read their articles here and here.

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Sri Lanka

4 October 2016 – A joint event between the Sri Lanka Medical Association and the National Cancer Control Program Sri Lanka screened the trailer for the “Life asked Death” movie as part of their effort in bringing awareness of palliative care to the medical personnel in medical association.

6 October 2016National Cancer Institute, Maharagama organised a series of talks by Dr Suraj, Dr Sujeewa, Dr Hemantha, Dr Ranjan, Dr Samadhi and Dr Kosala on various topics pertaining to palliative care. A primere of the “Life asked Death” movie was also screened at the event, which left 115 staff members of the Institute motivated and willing to contribute to palliative care.

8 October 2016 – Creating awareness on palliative care, the Pain Clinic at National Hospital Sri Lanka held a walk as part of the World Hospice and Palliative Care Day 2016. Palliative Care Association of Sri Lanka also commemorated the day with the screening of the “Life asked Death” movie.

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Myanmar

The movie screening event in Myanmar was jointly organized by U Hla Tun Hospice Foundation and The Myanmar Society for the Study of Pain in Myanmar. There was an audience of about 400, including the media. Many of the audience were teary at the end of the movie and gave positive feedback, showing that an awareness on the importance of palliative care has been created through the movie.  The event was reported by Myanmar International TV at this link.

   

 

Five more days to APHN-LCPC movie Life Asked Death Online Premiere

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The Lien Collaborative is a project by the Asia Pacific Hospice Palliative Care Network (APHN) and Lien Foundation to enhance palliative care leadership and capacity in developing countries.

New palliative care services have been started at key government hospitals and cancer centres in Bangladesh, Myanmar and Sri Lanka by participants of the Lien Collaborative.We turned the camera on the remarkable work being undertaken by the International teams and local stakeholders from this initiative.The result is Life Asked Death, a breathtaking documentary film that delves into the world of building palliative care capabilities in Asia.

On 8 October 2016, in conjunction with World Hospice and Palliative Care Day, Life Asked Death will premiere in a free Global Event at www.lifeaskeddeath.com

Watch the Life Asked Death trailer now and spread the word about the release of this important film!!

 

 

Award for Palliative Care Leadership Programmes – Institutions from all over the world are welcome to apply

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Dear friends,

Please help to share!

The European Palliative Care Academy (EUPCA), in collaboration with the European Association for Palliative Care (EAPC), has developed the award. They  are looking for leadership capacity-building programmes worldwide that are striving to develop palliative care at a time when it is needed most. These initiatives could take place in your hospice, hospital or other palliative care institution.

The winner will be announced at an award ceremony during the 15th EAPC World Congress, Madrid 2017. A representative of the winning institution will receive registration, accommodation and travel costs to attend the conference and ceremony.

Click here to apply today!

Deadline for submissions: 15 November 2016

Pain – when it affects the person

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This article originally appeared in ehospice.

The theme of World Hospice and Palliative Care Day 2016 is: ‘Living and dying in pain: It doesn’t have to happen’. ehospice, with permission from the Journal of Pain and Palliative Care Pharmacotherapy, is drawing on narratives to highlight the effect of pain on people and families, and the value of palliative care and pain control in addressing this issue. Follow the life story R.K. and the effect of pain. Click here to read the full story.

Here are some takeaways by the author:

  • Unrelieved pain has a devastating effect on the sufferer.
  • One should look for pain by asking the simple, direct question.
  • Most of the time, pain can be relieved by relatively simple means.
  • When pain is relieved, the whole attitude of the patient changes.

75% of the world population does not have adequate access to controlled medications for pain relief. As a result, millions of people suffer from pain which is avoidable and could be managed with proper access to the correct medications. Find out how you can play a part during the World Hospice and Palliative Care Day by visit the WHPCA website.

Professor Julia Downing awarded Honorary Fellowship from Cardiff University

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This article originally appeared in ehospice

Professor Julia Downing received an Honorary Fellowship from Cardiff University on 14 July in recognition of her international work in palliative care.

On 14 July, Professor Julia Downing, Director of Education and Research for the International Children’s Palliative Care Network, was awarded an Honorary Fellowship at the annual Graduation Ceremony at Cardiff University in Wales.

The University awards Honorary Fellowships to those who have achieved international distinction in their field.

In addition to being the Director of Education and Research for the International Children’s Palliative Care Network, Professor Downing is an Honorary/Visiting Professor at several universities including Makerere University in Kampala, Uganda, the University of Belgrade and Edge Hill.

She is an experienced palliative care nurse, educationalist and researcher, with a PhD that evaluated palliative care training in rural Uganda. She has been working in palliative care for 26 years, with seventeen of these working internationally in Uganda, Africa, Eastern Europe and throughout the world, developing palliative care services for adults and children.

Julia moved to Uganda in January 2001 and worked initially as the Director of Education at Mildmay Uganda, before moving to the African Palliative Care Association and now Makerere University.

Julia is known and respected internationally as a leader in the field of palliative care and has contributed to numerous relevant textbooks, journals and conferences.

At the ceremony last night she gave an inspiring speech to the over two thousand strong audience, most of whom being recent graduates in the medical field. She encouraged those starting out in their careers to always be proud of their chosen career, to take risks and to consider opportunities which call on them to step outside their comfort zones.

Asked to comment on this prestigious award, Professor Downing told ehospice, “I am honoured, delighted and excited to receive the award and accepted it on behalf of everyone I work with across the world, improving access to palliative care.”