Paediatric Palliative Care Service Directory Update

Dear friend

Thank you for adding your service to the Paediatric Palliative Care Service Directory.

Please do not hesitate to contact Joyce at aphn@aphn.org should you wish to find out more information about the Paediatric Palliative Care Special Interest Group and our activities!

Warm regards

APHN Secretariat Office

4th Maruzza Congress on Paediatric Palliative Care

Click http://www.childrenpalliativecarecongress.org/congress-2018/ to go to the conference website.

The APHN is proud to be a supporting partner of this conference.

APHN-Hospis Malaysia Workshop: Communication Skills

Dear Doctors, Nurses and fellow healthcare professionals,

PALLIATIVE CARE WORKSHOP ON COMMUNICATION SKILLS (14 – 15 April 2018)

We would like to invite interested participants to our 2-day Palliative Care Workshop on Communication Skills which will be conducted from 14 – 15 April 2018.

Effective communication skills are an absolute necessity towards providing well planned palliative care which is delivered through the collaborative efforts of many people including the patient, their care givers (family and friends) and healthcare providers.

This workshop deals with the mechanics of communication that ranges from issues, techniques and practical sessions when dealing with patients with life-limiting illness and their families.

This workshop will be facilitated by Dr Rebecca Coles-Gale, Clinical & Health Psychologist from the United Kingdom together with Dr Sylvia McCarthy from Hospis Malaysia. This workshop will focus on highly interactive role plays, problem-based learning and case studies in small group settings.

It is conducted in English, all participants will be expected to communicate and interact during the workshop. Doctors and nurses will benefit most as the most difficult areas are encountered during clinical consultations.

Registration for workshop can be made online at our website: www.hospismalaysia.org For further enquiries, kindly contact Communication Department via telephone: 03 9133 3936.

Thank You.

 

Yours sincerely

 

Dr Ednin Hamzah

Chief Executive Officer, Hospis Malaysia

 

EPEC-Paediatrics Workshop 2018

The EPEC-Paediatrics Workshop registration has closed due to overwhelming response. Thank you for your support.

34th LCPC-SHC Postgraduate Course in Palliative Medicine opens for registration!

Dear friends, the APHN will like to share this message from the Lien Centre for Palliative Care, Singapore.

We are pleased to announce that the 34th LCPC-SHC Postgraduate Course in Palliative Medicine will be held on 25-27 Apr 2017 (Wed-Fri, 3 days). Please refer to the above course brochure for more details.

Course Description & Objectives

This course is a foundational course in the principles and practice of palliative medicine which is applicable to all fields of medicine.

The objective is to increase professional confidence and competence in the management of patients with terminal illness. Course participants would also have opportunities to personally assess patients and to discuss the most appropriate management strategies with palliative care physicians and other specialists in the field.

Who Should Attend?

Any doctor (medical officer/resident, family physician or specialist) who is interested to learn about palliative care is welcome to attend this course. Priority will be given to local physicians working in the related fields.

Venue and Fee

Venue: HCA Hospice Care, Level 3, Auditorium

12 Jalan Tan Tock Seng, Singapore 308437

Fee:       S$800 (inclusive of GST)

(Payment details will be advised upon registration)

Registration

Please click the following link https://www.duke-nus.edu.sg/lcpc/course-catalogue for online registration from 14 Feb to 13 Mar 2018. Registration may close earlier without prior notice once the max intake capacity is reached.

For course enquiries, please contact us at lcpc@duke-nus.edu.sg.

Thank you.

Best Regards,

Education Team

Lien Centre for Palliative Care

EPEC-Paediatrics Workshop 2018

Dear applicant

Thank you for submitting your online application to the EPEC-Paediatrics Workshop 2018.

We will inform you of your application outcome via email within 2 weeks.

Please do not hesitate to contact Joyce at aphn@aphn.org or +65-6235 5166 should you have further enquiries.

Warm regards

Asia Pacific Hospice Palliative Care Network
Paediatric Palliative Care Special Interest Group

Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program

Abstract

Background

Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still lacking. This study compared patient-related outcomes and healthcare expenditures between those who received home-based paediatric palliative care and standard care. The quality of life and caregiver burden for patients receiving home-based paediatric palliative care were also tracked over the first year of enrolment to evaluate the service’s longitudinal impact.

Method

A structured impact and cost evaluation of Singapore-based HCA Hospice Care’s Star PALS (Paediatric Advance Life Support) programme was conducted over a three-year period, employing both retrospective and prospective designs with two patient groups.

Results

Compared to the control group (n = 67), patients receiving home-based paediatric palliative care (n = 71) spent more time at home than in hospital in the last year of life by 52 days (OR = 52.30, 95% CI: 25.44–79.17) with at least two fewer hospital admissions (OR = 2.46, 95% CI: 0.43–4.48); and were five times more likely to have an advance care plan formulated (OR = 5.51, 95% CI: 1.55–19.67). Medical costs incurred by this group were also considerably lower (by up to 87%). Moreover, both patients’ quality of life (in terms of pain and emotion), and caregiver burden showed improvement within the first year of enrolment into the programme.

Discussion

Our findings suggest that home-based paediatric palliative care brings improved resource utilization and cost-savings for both patients and healthcare providers. More importantly, the lives of patients and their caregivers have improved, with terminally ill children and their caregivers being able to spend more quality time at home at the final stretch of the disease.

Conclusions

The benefits of a community paediatric palliative care programme have been validated. Study findings can become key drivers when engaging service commissioners or even policy makers in appropriate settings.

Read the full open access article here.

The status of palliative care in the Asia-Pacific Region

“…it is easy to become immersed in a sense of failure when faced with this enormous challenge. When our hands are empty and our hearts heavy, reach out to colleagues, be kind to ourselves, turn to the joy and the beauty to be found in the simplicity of a smile, an act of kindness, a song or a sunrise, reconnect and persevere together…”

Spruyt O. The status of palliative care in the Asia-Pacific Region. Asia Pac J Oncol Nurs [serial online] 2018 [cited 2018 Jan 22];5:12-4. Available from: http://www.apjon.org/text.asp?2018/5/1/12/222133

 

Hong Kong 2nd Community End-of-Life Care International Conference

The Community End-of-Life Care International Conference will be held on June 20-21, 2018. Sponsored by the Hong Kong Jockey Club Charities Trust, registration is FREE.

Some of the keynote speakers for this conference are Dr. Stephen Connor – Executive Director, Worldwide Hospice Palliative Care Alliance (WHPCA), Prof. Irene Higginson – Professor of Palliative Care and Policy King’s College London; King’s Health Partners, Director, Cicely Saunders Institute, Prof. David Currow – Professor of Palliative Medicine, Faculty of Health, University of Technology Sydney, Prof. Wang Ying Wei –Director General, Health Promotion Administration, Ministry of Health and Welfare, Taiwan

Find out more at the conference website here.

End of life care: how do we move forward?

Abstract: Death and dying are inevitable. High quality and accessible palliative and end of life care can help people who are facing progressive life-threatening and life-limiting illness, and those dear to them, by focusing on their quality of life and addressing the problems associated with their situation. This paper draws attention to the scale of the challenge, some of the key areas we could address and the shifts in culture, mindset and leadership approach that are needed.

Conclusion: The Ambitions for Palliative and End of Life Care Framework explicitly recognises through its six ambitions, i.e. each person is seen as an individual, each person has fair access to care, maximising comfort and wellbeing, care is coordinated, staff are prepared to care, and each community is prepared to help. It acknowledges that achieving this whole-system approach of ‘what good looks like’ in palliative and end of life care requires every individual, organisation and society as a whole to work together, so that the goal of the best possible end of life care can be achieved.

Read the full article here. (J R Coll Physicians Edinb 2017; 47: 369–73)

The Long Goodbye: Coping With Sadness And Grief Before A Loved One Dies

By J

“…frailty and serious illness can involve significant losses over an extended period of time, giving rise to sadness and grief for years. Looming over everything is the loss of the future that an older adult and his or her family imagined they might have, often accompanied by anxiety and dread.

This pileup of complex emotions is known as “anticipatory loss.” “The deterioration of function, disability and suffering have their own grieving processes, but helping families deal with that isn’t built into the health care system,” said Dr. John Rolland, professor of psychiatry at Northwestern University’s Feinberg School of Medicine…”

Rolland and several other experts offered advice on how to deal with difficult emotions that can arise with frailty or serious illness, such as acknowledging your feelings, talking openly, communicating sensitively, leaning in, seeking support.

Read the full article at https://khn.org/news/the-long-goodbye-coping-with-sadness-and-grief-before-a-loved-one-dies/view/republish/

Travel Grants to 23rd Congress of the Japanese Society for Palliative Medicine

Dear friends

The 23rd Congress of the Japanese Society for Palliative Medicine (JSPM) is open for registration. We are pleased to announce that the JSPM 2018 organizing committee will offer travel grants to overseas participants who would like to submit abstracts as International members, traveling from all parts of the world(country,25 or below at this site) to present high quality papers at the meeting. Only one person per abstract (the presenting author) will be considered for the Travel Grant. Funding for travel will not exceed JPY50,000 per grant, and will be limited to 20 members.

For more information on the congress and travel grant, please visit the website http://jspm2018.umin.jp/english/

I will be going and I look forward to seeing you there!

Joyce Chee, APHN Executive

On behalf of Prof Yoshiyuki Kizawa, APHN Council Member and President of the 23rd JSPM