APHC 2019: Abstract submission alternative

Dear friends,

We sincerely apologise for the inconvenience caused as we understand some may have issues submitting an abstract using the conference website. We have opened an alternative submission portal via APHN for you. 

Please click on this link to submit your abstract: http://aphn.org/asia-pacific-hospice-conference/
(Note: Upon successful submission you will be redirected to the conference website. But you may choose to register and pay later.)

Your patience and understanding in this matter has been greatly appreciated and we look forward to seeing you in Surabaya in August 2019!

 

Thank you.

APHN Webinar #10

Hello everyone!

The APHN will be hosting it's first webinar of the 2019 APHN Webinar series on 24th January 2019. Once again, we have partners all over the region who will be screening this webinar at the respective venues for you to attend! Get this chance to network with other APHN members and friends!

We are honoured to have Dr Naveen Salins speaking on the topic of "Management of Delirium". Dr Salins is the Professor and Head of the Department of Palliative Medicine at the Kasturba Medical College, Manipal. His area of interest in palliative care is end-of-life (EOL) care, and he played a pivotal role in drawing up the position statement and policy guidelines on EOL care for India. He is one of the national lead from India for disseminating the integrated care plan for the dying by collaborating with the International Collaborative for the Best Care of the Dying, University of Liverpool. He played a significant role in the ICRMR, ELICIT, IAPC initiative towards creating the standard definitions and terms for the end of life care. We believe that you will be able to get the latest updates and enjoy the meaningful discussions during this webinar session.

Join us! This webinar is FREE for all palliative care colleagues, so SIGN UP NOW at this link! Registration closes when slots have been filled up.

Note: For 2019, non-organisational members/non-Lien Collaborative affiliated countries (Bangladesh, Myanmar, Sri Lanka, India, Bhutan and China) will only be able to participate in two webinars. Hence, we encourage you to join our APHN membership. Membership fees start from USD $20 You may click on this link to apply: http://aphn.org/membership-2/application-for-organisational-membership/

We will like to thank all participating organisations for hosting this event and supporting this APHN initiative.

For more information or if your organisation will also like to participate, you may contact Joyce at aphn@aphn.org or call +65 6235 5166.

(The full list of host sites is still pending, do check back to see if your region has an available host site. The last date to register your institution as a host site is 15/1/19.)


REGISTRATIONS HAVE NOW CLOSED. THANK YOU.

Teaching Hospital of Sichuan University

Venue:

Remote Consultation Center (3rd Floor), Huaxi Xiyuan Building, Palliative Medicine Department of No. 4 West China Teaching Hospital of Sichuan University

Sec.3, No.18, Ren Min South Road, Chengdu, China

Hospis Bangladesh

Venue:

Hospice Bangladesh, Meeting Room

92/2/A, Asad Avenue, Mohammadpur, Dhaka-1207, Bangladesh

National Institute of Cancer Research and Hospital

Venue:

National Institute of Cancer Research and Hospital, Conference Room, Level 2, Hospital Building Mohakhali

TB Gate Road, Mohakhali, Dhaka 1212, Bangladesh

Dr. STM Hospital Government Medical College, Haldwani

Venue: 

Dept of Anaesthesiology and Critical Care, Dr. STM Hospital Government Medical College, Haldwani

Rampur Road, Haldwani, Nainital, Haldwani, Uttarakhand 263129, India

RMD Specialties Hospital

Venue:

No:13, Raghaviah Road, T.Nagar, Chennai 600017

Sanjay Gandhi Post Graduate Institute of Medical Sciences Lucknow

Venue:

Sanjay Gandhi Post Graduate Institute of Medical Sciences Lucknow, Seminar Room, Department of Anaesthesia

Rae Bareli Road, Lucknow, Uttar Pradesh 226014, India

Dharmais Cancer Hospital

Venue: 

Dharmais Cancer Hospital, Webinar Room 4th Floor, Management Building

Slipi, Jalan Letjen Jend. S. Parman No.84-86, RT.4/RW.9, Kota Bambu Sel., Palmerah, Kota Jakarta Barat, Daerah Khusus Ibukota Jakarta, Indonesia

Dr. Cipto Mangunkusumo National Hospital

Venue: Venue TBC

Universitas Padjadjaran, Faculty of Nursing

Venue:

Faculty of Nursing Universitas Padjadjaran , Audiovisual Room, Academic Building II, 2nd Floor

Jl. Raya Bandung-Sumedang Km. 21 Jatinangor

West Java, Indonesia 45363

 

Sri Lanka Medical Association

Venue:

The Council Room, Sri Lanka Medical Association, No. 06, Wijerama Mawatha, Colombo 07.

University of Sri Jayewardenepura

Venue: 

National Centre for Primary Care and Allergy Research, University of Sri Jayewardenepura, Conference Room (1st Floor)Nugegoda, Sri Lanka

Egodawatta Road, Boralesgamuwa 10290

Davao Regional Medical Center

Venue:

Family Medicine Conference Room at Palliative Ward, Level 2 Main Building, Davao Regional Medical Center

Apokon, Tagum City

Healthserv Los Banos Medical Center

Venue:

Healthserv Los Banos Medical Center, Medical Arts Building, Level 5, Board Room

8817 National Hwy, Los Baños, Laguna, Philippines

Hospice Philippines

Venue:

INTEGRITY TRAINING ROOM
Menarini Phils Inc.
4/F, 11th ave corner 28th St. Bonifacio High Street, Bonifacio Global City
Taguig, Philippines

Lung Center Of Philippines

Venue:

Lung Center of Philippines, 1st Floor AVR

Quezon Avenue, Quezon City 1100, Philippines

Makati Medical Center

Venue:

Makati Medical Center, 1st Floor Circular, Tower 1, Cancer Center Conference Room

No. 2 Amorsolo Street, Legaspi Village, Makati City, Philippines 1229

National Kidney and Transplant Institute

Venue:

National Kidney and Transplant Institute, 2nd Floor Diagnostic Building, Radiology Conference Room

 

Philippine Institute Of Traditional And Alternative Health Care

Venue: 

Philippine Institute Of Traditional And Alternative Health Care, 2nd Floor

Pitahc Building, Matapang, Pinyahan, Quezon City, 1100 Metro Manila, Philippines

San Beda University

Venue:

Pamanang Bedista, San Beda University

Mendiola St, San Miguel, Manila, 1005 Metro Manila, Philippines

Silliman University Medical Center

Venue:

5th Floor Roofdeck, Medical Arts Building
Silliman University Medical Center
V. Aldecoa Road Daro Dumaguete City

The Ruth Foundation for Palliative And Hospice Care Inc.

Venue:

The Ruth Foundation for Palliative And Hospice Care Inc., Room Number 2719,27th Floor

Entrata Urban Complex #2609 Civic Drive, Filinvest City Alabang Muntinlupa City, Philippines

Yishun Community Hospital

Venue:

Yishun Community Hospital, Tower E Level 1 Auditorium

2 Yishun Central 2

Singapore 768024

 

Karunruk Palliative Care Center

Venue:

Karunruk Palliative Care Center, Conference Room, 18th Floor, Somdet Phra Srinagarindra Memorial Building, Srinakarind Hospital, Faculty of Medicine, Khon Kaen University 123

Mittraparp Highway, Muang District, Khon Kaen 40002, Thailand

APHN-Hospis Malaysia: Workshop on Palliative Care Nursing

Workshop on Palliative Care Nursing : 26 – 27 January 2019

Dear Doctors, Nurses & fellow healthcare professionals,

We would like to invite participants to our 2-day palliative care workshop on Nursing Care on 26 and 27 January 2019 which kick starts our series of workshops for 2019.

Palliative Care provides patients with life-limiting illness and their families a new opportunity for choice when many curative options are lost. The objective of this workshop is to equip healthcare professionals with necessary skill and knowledge towards provision of a holistic patient-centered care.

This workshop is conducted in English and facilitated by experienced Palliative Care Nurses from Sydney, Australia, Mr. Joshua Cohen and Ms. Caroline Belfanti. This workshop will address important aspects of care and topics include patient assessment, communication issues, wound management and the entire spectrum of patient care which is vital towards ensuring patients receive the due care they need in their preferred familiar surroundings.

The workshop program, registration and a summary of workshops for 2019 are attached to allow for future planning of your staff training and education budget.

Workshop registration can be made either online at our website: www.hospismalaysia.org or, completed registration form emailed to: education@hospismalaysia.org or faxed to: 603 9133 3941. For further enquiries, please contact Kai Lee at telephone: 03 9133 3936 ext. 207.

Thank you

 

Yours Sincerely,

Dr Ednin Hamzah

Chief Executive Officer, Hospis Malaysia

Grace Hospice- Mongolia

History of Grace Hospice Home Care Program

Grace Hospice program of which patients with advanced cancer and for whom cure is improbable are visited in their homes.

Grace Hospice was established in 2005. We offer home care services for individuals in need in the entire Mongolia and surrounding area, and have an office located in Chingeltei. The staff visit patients using public transportation, and routinely provide from Monday through Friday beginning at 9 am to 5-6 pm until all scheduled patients have been visited. Physicians receive telephone calls to help support the caregivers and patients and provide advice on symptom control and help them to understand what is happening with the patient. Currently the staff of Grace Hospice consist of 2 Mongolian physicians, 3 nurses, a spiritual care counselor, a bereavement counselor, and a driver. Another important component of this team is the volunteers who have received 16 hours of classroom training. A caregiver support group meets once a month, and is usually attended by different people each time. The purpose is of the support group is for sharing amongst the family caregivers. It is a time for finding out that one is not all alone. It is a time for sharing of information and copying strategies. One person said “I didn’t have any place to cry”, and expressed appreciation to be able to do that in this group, where many such comments were made.

Following the development of that group, a bereavement group was started. Sometimes it is difficult to get individuals to take part in such a group. It is like the caregiver support group, as it too, provides a venue for sharing and learning that one is not alone. It is also a time to ascertain who is at risk. Finally, and most importantly, it is a time and place to give encouragement and hope that things will improve and that profound sadness will dissipate. Hospice care is primarily about accompanying the patient from the time he is sick until he no longer needs the support. It is with the recognition that quality of care is the goal and not increasing the quantity of life. Patient are living and have things to celebrate, so we are involved with celebration of birthdays and Christmas, Children’s Day, and also helping them to participate in family celebrations by helping to control symptoms they may have. Education and training never is complete and so with this realization, we participate in educational events related to palliative and hospice care in order to improve our knowledge by learning new skills and studying various areas of care in more depth. Grace Hospice offers free care and receives donations primarily through members of the United Methodist Church, which has headquarters in the US. If Mongolians wish to show their appreciation for hospice care they have received we encourage donations when possible. Also anyone who wants to offer support may do so by making a donation to the Grace Hospice program.

Grace Hospice

CPO Box 1242,Ulaanbaatar, Mongolia

T: +976 7011 2032

 

Exciting new journey for China SIG

Written by: Prof Enoch Lai, Chair, China Special Interest Group (SIG)
Edited by: Joyce Chee, APHN Executive

In the Asia-Pacific region, the Mandarin speaking population forms a significant percentage of the total population. Geographically, they are found in most of this region, and comprises of various ethnic groups and nationalities. Views on life and death are closely linked to the culture, background, customs and traditions of the individual. This in turn reflects on how palliative care is provided. Speaking the same language and having similar cultures, the Mandarin speaking population have a unique point of view when it comes to end-of-life issues.

The largest proportion of the Mandarin speaking population is located in China. In recent years, palliative care services are sprouting and developing at an unprecedented speed in China. The next step ahead will be to connect to the international palliative care community, work towards setting up a common standard and accreditation system and also to encourage mutual exchange. As the palliative care landscape continues to evolve in China, they can also be connected with other Mandarin speaking communities in the region, have access to resources and best practices around the world that is unique to the Chinese. These experienced professionals from other Mandarin speaking communities in Asia Pacific can provide palliative knowledge and skill to palliative professionals who are situated across all provinces in China to ensure that pain-free, dignified and quality end of life care is accessible to all Chinese.

One of the goals of the Asia Pacific Hospice Palliative Care Network (APHN) is to assist countries in the Asian-Pacific region in building capacity, improving service quality and increasing accessibility. Driven by this common purpose, Prof Cynthia Goh, Chair of APHN, Prof Enoch Lai, Chair of APHN China SIG and Prof Amy Chow, convened a mandarin speaking pre-conference under the Conference – “Innovation and Impact: The Review and Vision of Community End-of-Life Care” hosted by the Hong Kong Jockey Club Charities Trust and the Faculty of Social Sciences of the University of Hong Kong on 16 June 2018. Palliative professionals and experts were invited to exchange ideas and to explore the future development and international cooperation of palliative care in the region.

The meeting was attended by 20 palliative care professionals from Mandarin speaking regions. Action plans are currently in progress and updates will be provided at the next meeting during the Mandarin pre-conference workshop in APHC 2019 in Indonesia. We are all very excited to be in this journey and look forward to meeting again.

Lastly, we will like to thank to the Hong Kong Jockey Club Charities Trust and Prof Amy Chow for making this meeting possible by providing the venue and logistics support.

APHN Mini Interview Series- Dr Rumalie (Mae) Corvera, Philippines

Article written by Marita Linkson (APHN Volunteer)

This is the first in a mini-interview series featuring members of the 18th Council of the Asia Pacific Hospice Palliative Care Network (APHN).

Dr Rumalie (Mae) Corvera 1 was recently elected to the APHN Council, and represents The Philippines.

I asked Dr Corvera about her palliative medicine experience and influences, and where she sees her role on APHN Council 2.

  1. What can you tell me about your role establishing the Home Care and Hospice Program, University of Perpetual Help (Dalta) Medical Center.

After my Fellowship training in Supportive Palliative and Hospice Care, I was invited, along with a colleague, to help set up the HCH Perpetual Help; there was an initial proposal authored by Family Medicine Specialist, Dr Elinore Alba. The Medical Director, Perpetual Help, asked us to help with the implementation; which was rewarding in itself; but to see that it actually could be done, despite a few challenges, including slow acceptance by fellow physicians and budgetary constraints, was the most fulfilling part – coupled with the feedback from patients and families. They expressed gratitude for being cared for by a team from the hospital in the comfort of their own homes, and for us caring enough to see them where they lived.

  1. What do you think are the specific challenges for providing hospice and palliative care in The Philippines?

The lack of Government Support and Community Awareness. The Medical Community is also still in the uphill process of integrating it into “standard practice,” but I believe we are gradually getting there.

  1. What do you hope to achieve in your capacity as an APHN Councillor?

I would be most grateful to help in the area of training and education; not just by teaching, but by helping APHN to promote standards and develop references and resources for training, especially for our less developed Asia Pacific country members. I am also willing to be an advocate for establishing and empowering “Compassionate Communities” in the Asia Pacific region, in line with APHN Council’s vision and mission.

  1. What and/or who inspired you to specialise in Palliative Medicine…

My training at the country’s largest government hospital, Philippine General Hospital, where patients are often told “nothing else can be done,” and the life legacy of Palliative and Hospice Care Pioneer, Dr Josefina Magno.

…and what would you say to doctors or medical students who might be considering this path?

The APHN Council consists of 7 members to be appointed by sectors on a rotation to be determined alphabetically according to the name of the sectors (Constitution 12.2a), 7 elected members, and 6 Co-opted members.

That a critical core in the practice of Medicine is the embracing of true compassion…and to quote Joan Halifax.:

First, compassion is comprised of that capacity to see clearly into the nature of suffering. It is that ability to really stand strong and to recognize also that I’m not separate from this suffering. But that is not enough, because compassion means that we aspire, we actually aspire to transform suffering. And if we’re so blessed, we engage in activities that transform suffering. But compassion has another component, and that component is really essential. That component is that we cannot be attached to outcome.”


APHN Volunteer Reflection

“You make a living by what you get. You make a life by what you give.” ~Winston Churchill

Below is an article written by one of our volunteers, Li Ying. Li Ying is a Year 2 medical student at The National University of Ireland, Galway.

A Reflection on Volunteering with APHN

by Li Ying (article edited by Marita Linkson)

The healthcare industry often conjures up images of doctors with stethoscopes and patients in wards. However, so much more goes on behind the clinical setting; hidden from the public eye. Volunteering at APHN has opened my eyes to the work of regional networks and the most important aspect of their role; connecting medical professionals so they can share information and promote seamless integration of patients into different healthcare settings.

As a volunteer with APHN, my primary role was to assist with administrative tasks. One of my roles was to help collate and update the directory of palliative care services in Asia Pacific. Although seemingly mundane work, my volunteer coordinator, Joyce, regularly encouraged me to read more about palliative care and recommended courses for me to broaden my understanding. She took the time to explain her role and told me what palliative care meant to her. This helped me to really appreciate the value of my work.

A bonus of my volunteering stint at APHN was the opportunity to visit a local hospice and immerse myself in the services offered to patients. I had the privilege of both visiting the day care hospice facility, and following nurses on their home visits. Both experiences gave me first-hand experience interacting with the ultimate beneficiaries of APHN. Meeting the patients and staff devoted to palliative care dispelled some misconceptions I had about palliative care; for example, that palliative care is mainly for end-of-life patients. While that is generally true in a hospice, there are also patients who have outlived their prognosis, hence being admitted into a hospice is definitely not a death sentence! Early recognition of the need for palliative care helps to chart the journey for improving a patient’s quality of life before it gets too late. I have learnt to recognise that palliative medicine is as much an investigation into the patient’s beliefs, hopes and desires, as it is a focus on symptom and pain management.

Volunteering at APHN really gave me a more holistic view of palliative care – a perspective I would not have gained if I had simply volunteered to befriend patients. Thanks for this opportunity, APHN!

Launch of first Chinese educational video on children’s palliative care

This article was originally from ehospice.

Led by Butterfly Children’s Hospice, using a grant received from the Overseas Chinese Charity Foundation, the first Chinese language educational video was created to educate and promote the concept of palliative care. Mothers, health and social care staff from China and Hong Kong are featured in this video, which emphasises on quality of life for children and their families, also introduces the full range of care providers and services.

Read the full article here.

 

Will you be showing a video during World Hospice Palliative Care Day 2017? Email us at aphn@aphn.org to let us know!

A video game to help people cope with grief

This article was originally on eHospice.

“We made a video game that’s hard to play. It will never be a blockbuster. People have to prepare themselves to invest emotionally in a story that they know will break their hearts. But when our hearts break, they heal a little differently. My broken heart has been healing with a new and a deeper compassion — a desire to sit with people in their pain, to hear their stories and try to help tell them so that they know that they’re seen. We made a video game that’s hard to play. But that feels just right to me, because the hardest moments of our lives change us more than any goal we could ever accomplish. Tragedy has shifted my heart more than any dream I could ever see come true.” – Amy Green, creator of the video game ‘That Dragon, Cancer’

Read the full article here.

 

A plot that tugs at your heart, lifelike graphics, a simple impactful message. The message of  World Hospice and Palliative Care Day 2017: Universal Health Coverage and Palliative Care – Don’t leave those suffering behind, can be relayed in the form of a game. Email us at aphn@aphn.org to let us know what activities will you be having to celebrate and support hospice and palliative care.

‘Happy Death Day’ – palliative care and death awareness exhibition held in Thailand

This article was originally from eHospice.

Some 3,300 participants, with another 30,000 people watching the exhibition online, attended the ‘Happy Death Day’ palliative care and death awareness exhibition. The exhibition consisted of various zones, consisted of a talk on how to prepare for death and a ‘Last Talk’ session where people diagnosed with terminal illnesses share their experiences, feelings, hopes and dreams. The second day saw participants reflecting on their lives while lying in a coffin at the exhibition and interacting with speakers, patients, carers and the healthcare team at the ‘Death Cafe’, a casual setting to promote conversations on palliative care or death-related issues.

Read the full article here.

 

An exhibition is an interactive way to promote awareness of hospice and palliative care during World Hospice and Palliative Care Day 2017Email us at aphn@aphn.org to let us know what activities you will be having to celebrate and support hospice and palliative care.

Families in Crisis

This article originally appeared on eHospice.

Family doctors play a crucial role in supporting patients and families through life events, including death and bereavement, even without specialist training in palliative care. Many patients in India do not access primary care, due to the differences between states in economic resources and availability of health care workers. This has a detrimental effect on health outcomes and meant that patients and families living with terminal illness usually lack the support of their family doctor.

The palliative care teams are unable to treat every family member as their own patient as their resources are stretched. Suicide is a consequence of the huge strain families are under because of chronic or terminal illness. In India, 25% of documented are as a result of family problems and another 20% due to illness. The author suggests that for the current situation in India to improve, there needs to be better access to essential pain medications and implementation of government pain management and palliative care policies.

Read the full article here.

How palliative care helped me make an important decision in my life

A revisit to this article to start off the new year. More people need to know about palliative care and its benefits!

ehospice, with permission from the Journal of Pain and Palliative Care Pharmacotherapy, is drawing on narratives to highlight the effect of pain on people and families, and the value of palliative care and access to controlled medications for pain management in addressing this issue. Read the full article here.