12th Annual Paediatric Palliative Care Symposium at The Children’s Hospital at Westmead


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Thursday 3 March 2016


8.30am – 4.20pm (Registration from 8am)


Lorimer Dods Lecture Theatre
The Children’s Hospital at Westmead
Corner Hawkesbury Road and Hainsworth Avenue, Westmead   NSW


$250 medical (non-trainees)

$180 others

Registration fee includes GST. Cancellations will incur a 20% fee.

Keynote speaker: Ulrika Kreicbergs RN, PhD

Ulrika Kreicbergs holds a professorship, funded by the Gålö Foundation, in palliative care for children and youth at Ersta Sköndal University College and is also associated with the Karolinska Institutet, Stockholm, Sweden.  Her doctoral thesis entitled “To Lose a Child To Cancer: A Nationwide Study of Parental Experiences”, at Karolinska Institutet in 2004, has been acknowledged worldwide. Dr Kreicbergs completed postdoctoral studies at the Dana Farber Cancer Institute and Boston Children’s Hospital in Boston, US, and has continued her research in paediatric palliative care. Her research is now focused on factors in health care that can be modified or avoided to reduce suffering and thereby enhance quality of life for the child and their families.


8.00am – 8.30am: Registration

New Initiatives

8.30am – 8.55am: Hummingbird House, Queensland Children’s Hospice (Paul and Gabrielle Quilliam)

8.55am – 9.20am: Quality of Care Collaborative Australia (QuoCCA) for Paediatric Palliative Care Education (Anthony Herbert)

9.20am – 9.45am: Paediatric Palliative Care in Southern Tasmania (Chris Edwards)

9.45am – 10.15am: Morning Tea


10.15am – 10.45am: Bereavement Research: findings from the Compass Study (Leigh Donovan)

10.45am – 11.15am: Palliative Care and the Child with Neuroblastoma (Jusveer Rakhra)

International Guest Speaker

11.15am – 12.00pm: Talking about Death with Children who have Severe Malignant Disease (Ulrika Kreicbergs)

12.00pm – 1.00pm: Lunch

Grand Rounds

1.00pm – 2.00pm: Ethics Forum (Christine Duffield, Vicki Xafis, David Isaacs, Henry Kilham)

2.00pm – 2.15pm: Brief break

2.15pm – 2.45pm: Medical Marijuana (Sharon Ryan)

2.45pm – 3.15pm: Palliative Care Nursing in the community (Therese Smeal)

3.15pm – 3.40pm: Afternoon tea

International Guest Speaker

3.40pm – 4.20pm: Risk of parental dissolution of partnership following the loss of a child to cancer: a population-based long-term follow-up (Ulrika Kreicbergs)

4.20pm: Conclusion


Leigh Donovan, Bereavement Coordinator / PhD Candidate; Bereavement Support Program, Paediatric Palliative Care Service; Lady Cilento Children’s Hospital, Brisbane, QLD; Kids Cancer Centre, Sydney Children’s Hospital and UNSW

Julie Duffield, Clinical Practice Consultant, Paediatric Palliative Care Service, Women’s and Children’s Hospital, Adelaide, SA

Christine Edwards, Staff Specialist Palliative Care, Royal Hobart Hospital, Tasmanian Health Service, TAS

Anthony Herbert, Director, Paediatric Palliative Care Service, Lady Cilento Children’s Hospital, South Brisbane, QLD       David Isaacs, Senior Staff Specialist, Infectious Diseases and Clinical Ethics, The Children’s Hospital at Westmead, Sydney, NSW

Henry Kilham, Senior Staff Specialist Clinical Ethics, The Children’s Hospital at Westmead, Sydney, NSW

Ulrika Kreicbergs, Professor, Palliative Care for Children and Youth,  Ersta Sköndal University College and Karolinska Institutet Stockholm, Sweden

Gabrielle Quilliam, Co-founder, Hummingbird House, Brisbane, QLD    Paul Quilliam, Co-founder, Hummingbird House, Brisbane, QLD

Jusveer Rakhra, Fellow, Paediatric Palliative Medicine, The Children’s Hospital at Westmead, Sydney, NSW

Sharon Ryan, Senior Staff Specialist, Paediatric Palliative Care, John Hunter Children’s Hospital, Newcastle, NSW

Therese Smeal, Area Nurse Coordinator, Palliative Care, Sydney South West Local Health District, Sydney, NSW

Vicki Xafis, Clinical Ethics Coordinator, The Sydney Children’s Hospitals Network, Sydney, NSW

Published on: 27 January, 2016 | Last modified: 27 January, 2016